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"Long Covid/ Post Viral Fatigue"

About: NHS Greater Glasgow & Clyde / Long Covid Service

(as the patient),

Specific:

I were part of the NHS Long Covid Group sessions 2025.

Firstly, received my Long Covid work book...

I were relieved to learn from the Information within. That the NHS fully understand this illness.

I felt a sense of being heard and relieved.

This on its own alleviated the stress and anxiety from suffering from this illness.

Moving forward...Group  Video session  were extremely beneficial  as you felt Not Alone,  others  suffering from same challenges..

Where we could share experiences,  become part of our group family...This were a " Life Line" absolutely necessary in my view.

NHS Staff  extremely supportive  listened to is all, guided us all on our journey 

Post Group:  Full support from Diane,  OT  always at hand ...If I or others required her support....Knowing Diane was there were a great part of reassurance..

I would personally thank her.

The Future:

To all reading this.

You may feel your in a difficult place  nothings possible  life may not be the same...Your worried  frightened  your going through a grieving process for the Loss of You...How do I support myself...in every way.

However, my personal experience  after this Group....Through time  with good tools skills support and  advice  on all.  Hence above.

 You  gain good mindset ....Avoiding external stressors as they can act like triggers.

Don't justify your health to anyone...As this is a inward illness they cannot see.

Just simply advise...Thankyou for your interest in my health...However I prefer not to discuss.

Boundaries,  as some people find it difficult to comprehend what Long covid is....Don't exhaust yourself explaining it....Keep life simple  balanced  

Small steps at a time....Do not over do anything

If people press to know...Send them a long covid link...Stating please refer to.. 

One day  you will say to yourself....I do not think about Long Covid daily (Thinking about it is using energy you do not have)  (Trigger) ...This is because  you've got to a place  where your happy  positive  less relapses  possibly doing things without thinking  ....This is the secret  ...hence  your slowly getting yourself back.....

I would like to add,  no matter what point you reach in your journey of recovery...In my view its most important , at all times to keep life simple.

Never  ever go back to the old life of over doing things...Including must avoid external stressors  as that triggers your nervous system (protect) ....That way  you most likely will not relapse in my view.

Personal Note:   I presently have had less relapses now ...I feel happy,  It got a good handle on this  I am  on my way back very  slowly. ..

Future, I now have ....It will arrive one day.

Never give up, you can get through this...This will take time ...Give it the time it needs   I know its frustrating challenging   remember  you are not alone  ...Be kind and good to yourself...Always.

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