"Adrenal Insufficiency Care"

I was admitted to A&E at Crosshouse hospital with an adrenal crisis, the staff on shift didn't understand that I didn't have Addison's disease, so wouldn't present like a typical adrenal crisis as it's secondary adrenal insufficiency I have.

When I was admitted I was seen by an A&E Dr who arranged one dose of Hydrocortisone by IV and then passed me to the medics. By the time my next dose was due 6 hours later, I hadn't been seen by the medic. When I enquired about my potentially life saving medicine being given on time, I was informed by the nurse that they couldn't give me it as I hadn't seen the medic and I was fine as my obs were okay. I attempted to inform them that I had SAI and that my obs and bloods would be okay as I still produce ACTH. They wouldn't listen, and weren't willing to read my information leaflet for nurses as they said they knew how to treat an Addison's crisis. I had to threaten to inject myself before I got to see a dr to prescribe the Hydrocortisone. I do not understand why this cannot be given without a prescription as it is a life saving medication for me! 

This was an absolute shambles of an admission and had I not be able to advocate for myself things could have been worse. I spoke to a senior member of staff and they assured me they would make sure staff were made aware of the different types of Adrenal Insufficiency. They said they would put a poster up in staff areas. I felt assured they would do this. However, when I had another admission it was apparent that hadn't happened. Lucky for me, the nurse who I had on my previous admission, was there and took over my care. They had looked into adrenal insufficiency and apologised for not listening. 

I had offered to come in and speak with staff and chat about my experience In their A&E and provide information. 

As a patient with SAI, it's terrifying to know that the local A&E do not know how to treat you and if the worst were to happen and I was brought in unconscious that I may die as I wouldn't get the proper treatment. There is plenty of information on the Internet and print-outs for nurses on the Addison's charity website. I would suggest that you take advantage and educate staff. I am aware this condition is rare but that shouldn't mean staff aren't aware of it.