"Accessing Treatment for Crohn's Disease"

My son was diagnosed with Crohn's Disease 6 years ago.  He's only been seen once, by an Adult Gastro Specialist Nurse in February of this year.  A number of tests were required (small bowel MRI, colonoscopy, bloods, calprotectin). He had been on steroids for 2.5 years with no background (immunosuppressant medication).  The nurse said she wanted him to taper down and stop these gradually.  A letter was sent to the GP asking to prescribe 1 mg of prednisolone to allow the taper.  This was done, he had his MRI, bloods and other tests and last week had a colonoscopy at the Golden Jubilee.  For the last month or so his disease has become progressively more active, he's lost over stone in weight and has been off work.  Due to pressure from work he had to go back this week, but he's also had to step down from his role and reduce his shifts to just 5 hours a day as he just can't manage anymore, due to pain, fatigue and the other symptoms that come with active Crohn's Disease.  

He has been to his GP to ask for an urgent referral to gastro, he has called the Consultant office to ask how he could be seen quickly so that he is able to get help to manage his symptoms until an appointment.  He has also called the gastro nurse helpline and no-one has called him back.  Today, at an appointment with his GP he was told it could be months before he gets an appointment and his GP even suggested that he just turn up at the Emergency Department if things get really bad.  His colonoscopy results from the biopsies that were taken won't be available for months, he was told.  So, in the interim, between waiting for results and suffering now his disease is active what is he to do?  He has tried every avenue open to him to be told the same thing.....there's no appointments.  He knows what untreated and unmanaged Crohn's Disease leads to as he has experienced this prior to diagnosis, is that what needs to happen before he gets any help?  All he's asking for is help to manage his symptoms until a decision is made on a long-term treatment following his biopsy results.  As a parent, having to watch his happen again, with no way to help is heart-breaking and incredibly frustrating.