"Outstanding care and dedication."

Last year, I was diagnosed with invasive lobular breast cancer. Since then, I have undergone a mastectomy, breast reconstruction, chemotherapy, radiotherapy, and I am currently receiving hormone therapy and targeted therapy. Throughout this time, I have received outstanding care and support. The staff across all departments have been exceptional, and I am deeply grateful for the excellent service provided by the breast care team, radiotherapy unit, and the oncology department.

As part of my current treatment plan, I am currently prescribed ribociclib which is dispensed monthly by the hospital. While I understand this is a restricted and costly medication requiring secure handling, I believe there should be a system in place for safe home (or work) delivery. This would help reduce pressure on essential hospital services and improve convenience for patients.

I would also like to share some feedback regarding the MyCare app. While I have found it helpful in notifying me of new test results and letters, it does not provide alerts for new or amended appointments. On several occasions, I was unaware of changes and risked missing appointments—something I would never wish to do, as I greatly value the time and care provided by your team. This issue has also caused difficulties in managing my work commitments, as I’ve had to make last-minute adjustments due to the lack of notification. I believe that lifting this restriction and enabling appointment alerts through the MyCare app could help reduce the number of missed appointments within your department and improve the overall patient experience. It could also save sending out letters unnecessary if the patient request online notifications. Postal letters should still be an option for those who still want it though.

I contacted the MyCare Patient Portal Team regarding this issue and received the following response - the notifications are correct on your account, however different departments have put in place restrictions and medical oncology are one of these. Unfortunately, we are unable to override this, we recommend you feed this back to your clinical care team.

I hope this feedback can be taken into consideration to improve the experience for patients like myself who rely on accurate information to manage both treatment and daily life.

I would once again like to take this opportunity to thank all the staff for their outstanding care and dedication. I have received excellent care and support throughout my treatment and it is very much appreciated.