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"Excellent 111 service"

About: DHU Healthcare CIC / NHS 111 Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus / Accident and emergency

(as a service user),

We called 111 out of desperation. We had taken our teenage daughter, who has an underlying condition of Phelan McDermid syndrome, to A&E twice in the previous three days to be sent home both times almost immediately. We knew she wasn’t very well, with spiking temperatures, vomiting and general lethargy. She had been in hospital on two separate occasions for sepsis in the past year. Our daughter is non-verbal and cannot always feel pain. We didn’t know what to do and thought we shouldn’t go to A&E again, as we could be deemed to be wasting their time.

The 111 service was amazing. The call handler listened and heard our concerns. A doctor phoned within ten minutes and converted the call to a video call. Straight away he said he did not like how she presented. He booked us into A&E. Without this, we would have stayed at home and she would have continued deteriorating.

We ended up staying in hospital for nine weeks due to a diagnosis of HLH, four days of which were spent in PCCU. We will always be grateful to the wonderful staff at QMC, once we were finally admitted, but without the 111 staff we spoke to that morning of May 11, our outcome could have been drastically different.

They will probably say they were doing their jobs, but to us it was more than that. They took us seriously  and listened to us, because our daughter cannot not speak for herself. I can’t put into words how grateful we are and will always be. 

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Responses

Response from Kelly Morley, Patient Experience Officer, Patient Experience and engagement, Nottingham university hospitals 3 days ago
Kelly Morley
Patient Experience Officer, Patient Experience and engagement,
Nottingham university hospitals
Submitted on 15/10/2025 at 15:35
Published on Care Opinion at 15:35


Dear Patient,

I am so sorry to read of your daughters recent health problem and was so saddened to read of your experience with the A&E department, it must have been so frustrating. I have passed this on to the senior managers of the teams you mentioned, as feedback such as this, is so important. I truly hope that our 111 colleagues also see this review.

The ED Matron is truly sorry to hear that your experiences in the Emergency Department have been difficult and that you felt that you couldn’t bring your daughter back to the department. Please know that we are continually striving to uphold the Trust’s values and are deeply committed to ensuring that parents and patients feel safe, supported, and well cared for every time they visit. Your feedback is important to us, and we want to work towards rebuilding your trust in our care. Please could you get in touch with us via PALS so we can get in touch with you directly to discuss this further regarding your daughters care or even let us know what wards you experienced, via the email address nuhnt.pals@nhs.net.

I am as pleased as you are, to hear that the 111 doctor was able to identify quickly your daughter’s condition and work alongside our staff here from that call, in acknowledging and treating the problems she was experiencing we sincerely look forward to hearing from you.

Kind regards,

Kelly – patient experience officer.

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