"Lost a very valuable and helpful source"

I have longterm ME/CFS and have had very bad, bad, and some better periods over the last few years. Over the last 3-4 years I lost both my parents and my Wife then lost both her parents - there haver been other family losses too - which has stressed both of us causing me to relapse a couple of times, after each relapse recovery has taken longer and been much harder, and recovery is less complete each time.

The last 6 months have been bad, sadly coinciding with changes to the local PVFS service - which for me personally has been a Very Bad Thing as we have lost a very valuable and helpful source of help and advice.

I now feel as if my 'freeboard' (boating term: the bit that is above waterline) is being reduced all the time and I'm unable to regain or recover from my relapse this time around - to the point where I'm unsure how much longer I can continue as things stand. Yet I/we are currently without the previously superb advice and help -  practical advice and help for overall management of my condition, so I currently have no recovery plan as everything is just getting too much.