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"Treatment should have started immediately but they refused to accept it"

About: North Devon District Hospital / Accident and emergency Royal Devon & Exeter Hospital (Wonford) / Neurology South Molton Hospital

(as a service user),

I was taken by ambulance after a 1 1/2 hour wait when I lost the use of both legs following a shingles vaccine.  When I arrived at A&E my wife advised staff that I was suffering from Guillain -Barre Syndrome but this was dismissed.  I was then transferred to Exeter hospital where I suffered bed sores. After 10 days they had to admit that I did indeed have GBS. Treatment should have started immediately; it was suspected but they stubbornly refused to accept it, and as a result my condition deteriorated.

After eventually receiving IVIG I was transferred to South Molton Hospital for 4 weeks for rehab but this was very limited and I was left in bed or chair and received very little rehab. I should have gone to the specialist unit at Exeter but was told that the locals would complain if I took up a bed there. The food in South Molton was awful and not suitable for a long term patient as they had closed the kitchens (cost cutting?) and were serving microwave meals and packet soup and sandwiches . Due to lack of fibre I was dosed up with laxatives and as the staff were too busy to answer the call bell I was frequently left in my own mess.  I had to be discharged unable to walk before I suffered malnutrition as I had lost 1 1/2 stone in the hospital system. 

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Responses

Response from Lisa Townsend, Patient Experience Feedback Lead, Patient Experience Team, Royal Devon University Healthcare NHS Foundation Trust 2 weeks ago
Lisa Townsend
Patient Experience Feedback Lead, Patient Experience Team,
Royal Devon University Healthcare NHS Foundation Trust

I take patient feedback and work with all departments at Royal Devon University Hospital NHS Trust to implement service change and improve the patient experience.

Submitted on 29/09/2025 at 14:01
Published on Care Opinion at 14:04


picture of Lisa Townsend

Dear Puppisfy66

Thank you for taking the time to leave feedback following your recent admission and experience of our services. I am sorry to hear that you did not feel listened to and the other issues you have raised, I am sure this must have been very distressing experience for you.

Given the anonymous nature of Care Opinion and that there is more than one service involved in your feedback, it is difficult to give a comprehensive response via this platform. However, we would welcome the opportunity to take a closer look at the points raised in your feedback.

Please can I ask you to send a copy of this feedback along with any other relevant details to rduh.complaints@nhs.net. I have included a link to a leaflet that you may find helpful here.

I understand that you may have left feedback via Care Opinion because you do not wish to make a formal complaint. If this is the case, please can I assure you that your feedback has been shared with the senior managers of the services you have mentioned and will be discussed for learning with teams involved.

Kind regards

Lisa

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