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"No specialist aftercare for this type of problem"

About: General practices in Greater Glasgow & Clyde Queen Elizabeth University Hospital Glasgow / Spinal injuries unit

(as a relative),

In some areas the NHS is terrific, in others, it utterly fails.  

My son is paraplegic due to an accident many years ago. He had excellent treatment in Glasgow and came home after 6 months largely independent for life in a wheelchair. 

But no aftercare. 

Right now he has been on bed rest, lying on his side, for nearly 4 weeks due to a large gelatinous lump. After strong antibiotics it is no longer infected but the lump remains and with very tender skin and no flesh, the area is very vulnerable.   

Recently, after the NHS was unable to help him further due to no bed available in the appropriate ward, he went to a private consultation, lying on his side in the back of the car to get there. The private consultant agreed the private sector could not cope with this and suggested a private MRI scan which is awaited , to reveal the source of the ongoing problem and show to the NHS to action. 

My son has had problems with this area every 2 or 3 years including bed sores and extensive periods of bed rest. The big problem is there seems to be no specialist after care for this type of problem. It is extremely depressing for him to be bed bound except to get up for a shower and toilet and he is absent from his business.  GPs have agreed they do not have the expertise, and the Glasgow hospital has offered no aftercare advice.  The GP thinks he requires plastic surgery to remove the lump altogether but no space is available even on an urgent list.  

The helplessness felt when nothing is being done is seriously stressful.  

Other family members and friends have experience similar frustrations with accessing care.

Dare I say it’s top management or even the government not using their funds to best advantage? It appears to me that spending is not well-controlled.

The NHS is a wonderful service but needs a lot of rethinking to make it more efficient - but thank you for all it does do.

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Responses

Response from NHS Greater Glasgow and Clyde 2 months ago
Submitted on 14/08/2025 at 14:41
Published on Care Opinion at 14:41


Dear Janetida,

I am sorry that this has been your experience and your son has not received any aftercare to support with his injury. In order for us to investigate, please could you contact me on email - helena.richmond@nhs.scot with your name, and your sons date of birth and I will ensure that your situation is looked into.

Thanks,

Helena Richmond

Lead Nurse

Spinal Injuries Unit, Neurology Specialties, Rehabilitation Medicine & OMFS Outpatients

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