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"I have never experienced such a lack of care"

About: Royal Infirmary of Edinburgh at Little France / Accident & Emergency Royal Infirmary of Edinburgh at Little France / General Medicine

(as the patient),

I am a cancer patient who has gone through a series of different cancers throughout the 20 years since my initial breast cancer diagnosis. I currently have cancer at C3 in my neck as well as a tumour in my brain and a variety of other health issues, many stemming from previous cancers and treatments. I have extremely limited mobility, am not supposed to move without a walker or assistance, and wear a neck brace at all times.

While normally treated at the cancer unit at Edinburgh's Western General Hospital, I was admitted to the Royal Infirmary after a blood test picked up low kidney function due to a buildup of unprocessed pain medication. I was admitted via A&E in the early hours of the morning, and was told I could not be transferred to the Western where the staff are familiar with my medical records and underlying conditions because I am there regularly.

Over the course of the next day I was moved multiple times, eventually ending up in ward 207 where I was put on a fluid drip. During the night I was desperate for the toilet, and pressed my buzzer repeatedly for half an hour without any sign of a nurse. I could not wait any longer and removed the drip from my arm, but was too late to reach the toilet in time. I found this extremely embarrassing, and have never had this happen in all the years I have been in and out of hospital. I discovered afterwards that there had been a staff member in the kitchen beside our room door the whole time. Upon seeing me coming out of my room looking for help they shouted at me aggressively, telling me I shouldn't be walking around the ward like that. 

Once this had been resolved and I was back in bed a nurse came to reconnect me to the drip and could not find a vein in my left arm. This is a common problem as a result of my medical history. They asked a more senior nurse to come, who said to use my right arm instead. I have had the lymph nodes removed from my right shoulder, which means I am no longer allowed to have needles in the right arm as this could be extremely dangerous to me. I explained this multiple times and the senior nurse was dismissive and rude to me, and eventually insisted on inserting the cannula into my right arm despite my protests. This is absolutely never supposed to happen - doctors will always use my foot if the left arm is unsuccessful.

In 20 years of regularly being in hospital for both short stays and sometimes months at a time I have never experienced the lack of care that was evident in ward 207 at the Royal Infirmary Edinburgh. The attitude of the nurses that were working starting on the Monday was greatly improved and changed the atmosphere on the ward, but cannot excuse the experience I had over the weekend.

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Responses

Response from Mariska Vernon-Stroud, Patient Experience Team Lead, Patient Experience Team, NHS Lothian 2 months ago
Mariska Vernon-Stroud
Patient Experience Team Lead, Patient Experience Team,
NHS Lothian

I gather feedback from patients to recognise good practise and supporting improving services in NHS Lothian.

Submitted on 05/08/2025 at 14:18
Published on Care Opinion at 14:18


Dear Garnet,

Thank you for taking the time to share your story on Care Opinion. I was saddened to read about your recent experience from being moved multiple times, to having no response from staff to your buzzer, to being shouted at, and lastly not being listened to when advising staff about the difficulties of putting an IV in your right arm. I am so sorry and understand how this would have left you feeling embarrassed, dismissed and ignored. This is not the standard of care we wish anyone to experience.

I have forwarded your story onto the Senior team so they can review it, look into what happened and identify any areas of learning. We can investigate your individual situation more thoroughly if you contact the Patient Experience Team with your details. The Patient Experience Team can be contacted by telephone on 0131 536 3370 (Mon-Fri, 9am-2pm) or by email on LOTH.feedback@nhs.scot

Once again can I express my sincere apologies for your recent experience, and I hope any future treatment or hospital admissions will be characterised by compassion and care.

Kind regards,

Mariska

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