"Misdiagnosis of endometriosis for 10 years"

I am now alone , miserable, depressed, defeated and not sure in life purpose anymore.

I started experiencing severe pelvic pains many times during my menstrual cycle from the age of 13.

At 14 years old for 5 days whilst they tried to figure out what was wrong with me.

I was suspected to fasting preparation for appendix removal internal vaginal ultrasounds and more. Until I was released with suspected pelvic inflammatory disease and given antibiotics.

This did nothing at all. I had not even had sexual intercourse yet.

Next at around 17 I persistently told my GP that I had pain on one side of my pelvis and heavy bleeding and was told I possible had IBS and gluten intolerance.

I tried all the IBS medications nothing worked.

I struggled to conceive but did have two boys very young.

The extreme constant pain continued as I repeatedly asked for help and was told I just didn't handle period pain well!

As an adult I tried to conceive more children. I have been unable I had several miscarriages.

I went to an IVF clinic who found a pocket of fluid in the centre of my uterus which they believed could be a hole in my C section scar.  This was not found later in surgery!

I saw my GP repeatedly again. One told me to distract myself with things like singing and painting my house! To help me cope with pain and to try and get pregnant? 

I eventually did my own research of my systems and went to another  doctor and I explained everything to her. She finally did a referral to a gynaecologist. At 26 years old! 

I had several scans and based on symptoms I was given the diagnosis of endometriosis.

I was out in a waiting list for surgery.

For two more years lockdown period my endometriosis got so extremely bad that I could no longer walk far, I urinated blood daily with no infections, I could not empty my bowels without the feeling of my old C section scar ripping open. 

My autistic son was caring for me helping me in shops reassuring me when in pain. It was traumatic for us all. I would scream laying on bathroom floor during ovulation period and worse in days leading to period.

I had to scour the internet and find the email address for my gynaecologist's secretary to ask her for help desperately. 

I got my surgery after 3 years of waiting.

I had my surgery it was 7 hours long. They found extensive endometriosis on my bowel and uterus and around. They managed to remove it all. 

It was a close call they informed me that a bowel surgeon was in standby to give me a colostomy bag due to having to shave a patch of endometriosis off of my bowel. But managed to save it!

I am free from the agony but the emotional turmoil lives in I am isolated I lost all my friends I have no one anymore and I still can't get pregnant and desperately would love a baby as an adult.

I am so sad and feel my whole life has been wasted I am now in my early 30s and can't afford IVF . 

I blame the NHS for my life being already over from 10 years of hell.