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"No ongoing support following diagnosis"

About: Children's Specialist Health Services / Neurodevelopmental Service (NDS)

(as a parent/guardian),

After a 4.5 year wait my daughter has been seen by the neurodevelopment team and has been given an autism diagnoses.

Both Niamh and Rachel were really lovely and were great with my daughter and what was initially a difficult diagnoses to accept they made easier and were happy to answer any questions. 

Although the initial wait was long once she had reached the top of list assessment to diagnoses has been quick and thorough.

It's just unfortunate there is no ongoing support following diagnosis from the team as having a link person who you could chat with would make things easier longer term, I appreciate how stretched the service is etc but it's daunting walking away from the appointment thinking nothing has really changed she has a diagnosis but the support moving forward isn't there.

Niamh and Rachel are an asset to the team and made this whole journey easier to accept.

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