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Kind nurse but no follow up communication

Posted By KDB1

"Kind nurse but no follow up communication"

About: Dementia and Older Persons Mental Health / North & East Memory Assessment Team

(as a carer),

I took my dad to the memory assessment unit because he had been becoming forgetful. The nurse was very kind and explained everything to both of us. After my dad’s diagnosis, we received information about websites and leaflets. However, since the appointment, we have not received any follow-up communication. This lack of correspondence has only added to our concerns. My dad would like to know what the next steps are and what the plan is moving forward, as we are eager to understand the next steps, and feel we have been left with no support following a diagnosis.

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Responses

Response from Sarah Penter, Patient experience officer, Patient experience, Cornwall Foundation Trust last month
Sarah Penter
Patient experience officer, Patient experience,
Cornwall Foundation Trust

Patient Experience Officer

Submitted on 21/07/2025 at 11:19
Published on Care Opinion at 11:19

picture of Sarah Penter

Thank you for taking the time to leave feedback for one of our services. I am sorry feel you have been left unsupported. I have forwarded your concerns to the team who will hopefully be able to respond with some clarification for you.

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Sarah Penter, Patient experience officer, Patient experience, Cornwall Foundation Trust last month
Sarah Penter
Patient experience officer, Patient experience,
Cornwall Foundation Trust

Patient Experience Officer

Submitted on 21/07/2025 at 12:30
Published on Care Opinion at 12:30

picture of Sarah Penter

I have just spoken the the Parkinsons team and they have requested you contact them directly either by email or telephone. The phone number is a messaging service so if you leave a message, someone will get back to you.

cft.pdnurses.cornwall@nhs.net

01209 318048.

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Response from Sarah Penter, Patient experience officer, Patient experience, Cornwall Foundation Trust 3 weeks ago
Sarah Penter
Patient experience officer, Patient experience,
Cornwall Foundation Trust

Patient Experience Officer

Submitted on 28/07/2025 at 13:03
Published on Care Opinion at 13:03

picture of Sarah Penter

Unfortunately your feedback was sent to the Parkinsons team in error and should have been sent to the Memory Assessment Team. I have now passed this on and await their reply.

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Response from Vanessa Coomber, PCDP, DOPMH, Cornwall NHS Partnership Trust last week
Vanessa Coomber
PCDP, DOPMH,
Cornwall NHS Partnership Trust

PCDP - DOPMH

Submitted on 08/08/2025 at 18:17
Published on Care Opinion at 21:58

It is very overwhelming being given a diagnosis and sometimes the person living with the disease and their carers feel they are just left to navigate themselves through the disease. I am the Primary Care Dementia Practitioner (PCDP) for your GP practice. I am there just after a patient is diagnosed. Our role is to follow the person living with the disease and their loved ones through their journey, offering advice, support, and referrals at the right time, along the way. However, there is a brief moment from when the person is diagnosed and passes over to me. Our aim is to contact new patients and families within three months of diagnosis, and arrange an initial visit within six months post-diagnosis, as we have found that most families need processing time.

I have spoken to you a couple of times since your dad received his diagnosis, and provided you with some information and support. Therefore, I hope now, you feel that there is a contingency post-diagnosis and you know what the next steps are, and that you have a PCDP to turn to should you need them.

I look forward to meeting you all in due course.

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