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"No understanding of MND"

About: Queen Elizabeth Hospital

(as a carer),

Care for my husband with MND on Necton ward was appalling.

No understanding of how to manage his symptoms, use his NIV machine, no concept of why use the cough assist or suction.

No care, empathy or respect shown for my husband as a person.

MND is a complex illness. No two patients are the same.

The understanding of this disease was not there.

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