"Helping us feel human again"

I wanted to thank Karen, Joanna and the whole Post Covid Symptom Management team for all your help and for putting on the online sessions on Fatigue, Sleep, Anxiety, Breathing and more. Each session was expertly managed and well presented, and it was clear how much care and skill went into creating them.

Living with Long Covid can be incredibly isolating, lonely, and at times feels like being abandoned by the system. The condition is so variable, with no clear medical treatments, and many of us are left trying to find ways to manage on our own, day by day. Karen, Joanna and the team worked tirelessly to give us practical advice on symptom management, but most importantly, they made us all feel human again.

You created a safe, supportive space for us Long Covid sufferers, where we felt seen, heard, and understood. I was able to benefit from all the advice and learning in the sessions, but also from the social support and validation that came with being in that space with others who truly get it. For the first time since I became ill in July 2021, I had a glimmer of hope.

I am not someone who cries easily, but after my initial assessment, when I found out there was help available, I cried. Part of that was relief, and part of it was the feeling of being truly heard for the first time. The way you managed to create cohesive online groups where we could open up, share, and feel less alone is something I will always be grateful for.

Thank you for seeing us, for hearing us, and for helping us feel human again.