I cannot get NHS to convey autism needs on records. I'm strongly adversely affected by lights so have to choose venues by where has natural lighting hence went to small clinic for jag. Staff were nice but in denial of my experience of last vaccine and in denial of my needs to move and not be crowded or under lights. Time spent waiting to see if I was dizzy afterwards resulted in light damage that was far more incapacitating. I don't know how to explain bar via poetry
I don't understand how to use that yellow bar but not happy HypersensitivitiesSo I go in for the vaccine as suggested
they know I am autistic but still insist I sit
crammed with others in a corner under lights. I take
some control, explain I do not keep still, am not tidied
easily and wait, sharing smiles with the nurse
The jag is done, we talk through side effects and that
I couldn't have got shingles from the vaccine I had
as it wasn’t live. I had spots within days and blisters
5 days of difficulty working due to the pain. I demur
I sit tidily after the vaccine, no strength left to self-care
The lights cause my frontal lobes to shut down, head swims
I’m to sit here in case I get dizzy and can’t drive away
Now I am dizzy, not from the vaccine but the fluorescents
I cannot drive but I get the nod to leave as I haven’t blacked
out, get outside as soon as I may, sit in the car to recover
The autism sensitivity takes 5 times longer to recover from
than the vaccine is given and no-one notices this
That’s the invisible disability part I guess
they do not know what they do not understand
and really they have no time for such care
they would deny my experience as they denied my shingles
The drive home is torturous: every road seam feels like a blow
my nervous system now on hyper-alert I am twitchy
I smell perfumes through car windows, flowers on bushes
Hear my small chicks cheeping like gun shots
I need darkness and peace, needed that at the clinic
but we are expected to like happy crowding instead
Was the vaccine worth the exposure? On balance unlikely
as exposure to bugs is restricted by my non-social head.
"Pneumococcus vaccine experience"
About: NHS Ayrshire & Arran / Covid Vaccination Programme NHS Ayrshire & Arran Covid Vaccination Programme
Posted by waternb58 (as ),
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