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"Pneumococcus vaccine experience"

About: NHS Ayrshire & Arran / Covid Vaccination Programme

(as a service user),

I cannot get NHS to convey autism needs on records. I'm strongly adversely affected by lights so have to choose venues by where has natural lighting hence went to small clinic for jag. Staff were nice but in denial of my experience of last vaccine and in denial of my needs to move and not be crowded or under lights. Time spent waiting to see if I was dizzy afterwards resulted in light damage that was far more incapacitating. I don't know how to explain bar via poetry

I don't understand how to use that yellow bar but not happy
Hypersensitivities

So I go in for the vaccine as suggested

they know I am autistic but still insist I sit

crammed with others in a corner under lights. I take

some control, explain I do not keep still, am not tidied

easily and wait, sharing smiles with the nurse

The jag is done, we talk through side effects and that

I couldn't have got shingles from the vaccine I had

as it wasn’t live. I had spots within days and blisters

5 days of difficulty working due to the pain. I demur

I sit tidily after the vaccine, no strength left to self-care

The lights cause my frontal lobes to shut down, head swims

I’m to sit here in case I get dizzy and can’t drive away

Now I am dizzy, not from the vaccine but the fluorescents

I cannot drive but I get the nod to leave as I haven’t blacked

out, get outside as soon as I may, sit in the car to recover

The autism sensitivity takes 5 times longer to recover from

than the vaccine is given and no-one notices this

That’s the invisible disability part I guess

they do not know what they do not understand

and really they have no time for such care

they would deny my experience as they denied my shingles

The drive home is torturous: every road seam feels like a blow

my nervous system now on hyper-alert I am twitchy

I smell perfumes through car windows, flowers on bushes

Hear my small chicks cheeping like gun shots

I need darkness and peace, needed that at the clinic

but we are expected to like happy crowding instead

Was the vaccine worth the exposure? On balance unlikely

as exposure to bugs is restricted by my non-social head.

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