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"Advice must be accurate, balanced, and respectful"

About: East Dunbartonshire Health & Social Care Partnership

(as a service user),

I’d like to share some feedback following a recent appointment with a health visitor.

During the visit, I was told — unprompted — never bring your baby into bed with you. That’s what causes SIDS. I found this statement deeply concerning. I feel it was an oversimplification that misrepresents current evidence and ignores the complexity of Sudden Infant Death Syndrome (SIDS).

As a parent who has read widely and spoken with many other mothers, I know this is not the standard view held by all health visitors. I was disappointed that mine presented it as indisputable fact and didn't credit me with the intelligence to understand the nuance involved.

In reality, SIDS is not caused by one thing alone. While unsafe bed-sharing in high-risk situations (e.g. smoking, intoxication, soft bedding) can increase risk, safe co-sleeping in low-risk families has not been proven to cause SIDS. I feel that presenting it as the cause shuts down meaningful conversations about safety — and alienates parents who may already be co-sleeping out of sheer exhaustion.

When I asked for advice on helping my baby sleep in her crib, I was offered nothing useful. In my view, this lack of support, paired with the rigid warning about bed-sharing, leaves parents like me more vulnerable to potentially falling asleep on sofas or chairs with our babies.

I’ve been safely co-sleeping with my baby since birth, a decision made out of necessity. I hadn’t shared this with my health visitor before due to fear of judgment — a fear that, sadly, proved to be well-founded. This experience has left me feeling hesitant to seek help again.

Co-sleeping has enabled me to get the rest I need to function safely during the day, protect my mental health, and continue breastfeeding through the night, maintaining my milk supply and supporting my baby’s growth. These are meaningful health outcomes for both of us, yet they were completely overlooked.

I’m not dismissing the importance of reducing SIDS risk. But advice must be accurate, balanced, and respectful. I believe that fear-based messaging that contradicts evidence does a disservice to families and risks pushing struggling parents further into silence.

I hope this feedback helps encourage a more open, evidence-informed approach in future conversations with families.

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Responses

Response from Information & Governance Officer, Business Support, ED HSCP last week
Submitted on 26/06/2025 at 17:15
Published on Care Opinion at 17:22


Dear EDMum,

Thank you for bringing your experience to our attention. East Dunbartonshire Health and Social Care Partnership (HSCP) endeavours to provide the highest quality of care and support to patients, service users and carers. We encourage feedback and seek to learn from it.

I am sorry to read about your recent experience with your health visitor and how the information regarding Safe Sleep and Sudden Infant Death Syndrome was delivered.

Health Visitors should provide evidence-based, public health information as per the National Universal Health Visiting Pathway which is endorsed by the Scottish Government.

The Leaflet Safer Sleep for Babies 2024 A Guide for Parents and Carers is the evidence-based brochure that is provided to all parents. This is provided either as a paper document or promoted within the Health Visiting App NHSGGC launches health visiting app to support parents - NHSGGC

I would encourage a further conversation with your health visitor to reflect on your experience and to support you as a parent.

To identify learning from your experience, the service will review and discuss this feedback at their team meeting and implement any further training, education or changes to practice required.

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