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"Everything starts to make more sense"

About: Children & Young People Physical Health / Children's Neuro Development Service Doncaster

(as a service user),

My son is bright, curious, and creative 9-year-old boy. Just ten days ago, our lives changed: he was officially diagnosed with Autism Spectrum Condition and ADHD.

We first noticed signs when my son was three. He didn’t respond to his name, lined up his toys rather than playing with them, became upset by changes in routine, and cried at loud noises. I had a strong feeling something was different. We were referred to the Growth and Development Assessment (GDA) clinic at Doncaster Hospital. They observed some early signs but advised us to continue monitoring him.

As he started school, the challenges became more visible. He struggled to sit still, concentrate, and follow instructions and interactions with other children. At home, simple tasks were often difficult and time-consuming. By Year 3, he was having regular meltdowns, withdrawing from others, he loved google maps and video games.

When he turned seven, we were referred to the Children’s Neuro-Developmental Service.

After more than a year of waiting, he was referred to CAMHS (Child and Adolescent Mental Health Services) at Tickhill Road in Doncaster for further assessment and diagnosis.

CAMHS Diagnostic Process

•Initial Appointment (held online): A psychologist spoke with us about his behaviour, emotions, daily routine, family history, school experience, sleep, eating habits, and friendships.

•Questionnaires and Observations: We, as parents, and my son's teachers completed detailed questionnaires about his behaviour and emotions at home and at school.

•As my son showed signs of both autism and ADHD, CAMHS arranged:

•ADHD assessments (including interviews, behaviour rating scales, and Conners questionnaires)

•Autism assessments (using tools like ADOS-2 and detailed developmental history interviews)

Diagnosis and Feedback

Ten days ago, we attended our feedback meeting. The psychologist gently explained that he meets the criteria for both Autism Spectrum Condition and ADHD. He discussed the diagnosis in clear terms, gave us written reports, and helped us understand what it means for my son. He really did it well.

We felt a mix of emotions—relief that we finally had answers, and sadness that it had taken so long for him to get the support he needed.

Now that we have a diagnosis, his school may start a Special Educational Needs (SEN) plan. We might be offered parenting workshops, and an ADHD nurse will be in touch to discuss next steps.

He is still the same wonderful boy. He loves outer space, superheroes, and drawing alien worlds. The difference now is—we understand him better. And that makes all the difference.

To other parents who are still waiting for answers: don’t give up. The journey is hard, but the answers do come—and when they do, everything starts to make more sense.

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Responses

Response from Steve Forsyth, Chief Nurse, ROTHERHAM DONCASTER AND SOUTH HUMBER NHS FOUNDATION TRUST 3 weeks ago
Steve Forsyth
Chief Nurse,
ROTHERHAM DONCASTER AND SOUTH HUMBER NHS FOUNDATION TRUST
Submitted on 24/06/2025 at 09:31
Published on Care Opinion at 09:31


picture of Steve Forsyth

Dear James

Firstly an apology for the wait(s) you have experienced in navigating a complex system, here at RDaSH we are doing everything we can to bring all waiting times for any of our services down to 4 weeks. This is not aspirational, it is our promise to our communities, for this very reason you talk to about your amazing, creative and brilliant mind, your son!

For your consideration, we have governor vacancies, any spare time to volunteer, we have a children governor role - so much to potentially get involved with, no pressure, just a thought.

Please stay in touch, even if here as a platform to track and share your families journey.

If not have a google of our annual members meeting 19 July Scunthorpe, free ice cream, activities and the teams are there too!

Regards

Steve

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Response from Caroline Jefferies, Team Manager, Children's Care Group, Rotherham, Doncaster and South Humber NHS Foundation Trust 3 weeks ago
Caroline Jefferies
Team Manager, Children's Care Group,
Rotherham, Doncaster and South Humber NHS Foundation Trust
Submitted on 24/06/2025 at 14:12
Published on Care Opinion at 14:12


picture of Caroline Jefferies

Good Afternoon James,

Thank you so much for sharing your families very personal story with us and for really sharing with us a picture of your wonderful son and his interests!

Thank you for taking the time to break down the assessment process your family went through - this will be invaluable to other families going through the same process and hopefully provide them with hope for the future.

As Steve has said, we are sorry that the wait is so long and as a pathway we are working hard to reduce that wait, whilst not in time for your son - hopefully for other families in the same situation in the future.

I am really pleased to hear that having the diagnosis, and the feedback being provided was done well - and that you now feel you have a greater understanding of your wonderful super hero loving son. I will make sure that I share your feedback with the team.

Best wishes and best of luck for the future


Caroline Jefferies

Team manager N.Lincs and Rotherham on behalf of Jola Obisesan - Doncaster team manager

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