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"Mixed experience after surgery for aortic aneurysm"

About: Community Services - North Devon / Adult Community Nursing Musgrove Park Hospital / Vascular North Devon District Hospital / Urology

(as the patient),

I live near Bradworthy on the border between Devon and Cornwall and my local District Hospital is at Barnstaple, thirty miles away. However, they work with Musgrove Park Hospital, Taunton for some vascular surgery.

I had open surgery to repair an aortic aneurysm at Musgrove Park Hospital, Taunton in April 2025. Prior to surgery, I had been extremely impressed by the support and reassurance I had received for my condition from the Somerset & North Devon Vascular Network over a number of years as the aneurysm grew and I reached the threshold clinic.

In fact, I have nothing but praise and gratitude for the care and support which was provided by Mrs Darvall and her team (surgeons, anaesthetists and nurses) both before, during and in the Intensive Care Unit following surgery. The one issue which developed in the ICU was that my urinary catheter was removed too early and had to be put back.

After three days in the ICU, I was moved to the Montacute (Vascular) Ward. The staff here were very nice, but clearly under stress. Very often they would say they would go and do something but got waylaid by some other task and might not return for a long time. Those visiting me, found that if they asked a question, staff would go and fetch someone more senior to sort it out.

Again, in this ward, the urinary catheter was removed too early (in all I was given 4 catheters while I was in the hospital). I was discharged from the hospital at the end of April, having been sent back to the vascular suite in the Old Building for the previous night as my bed was needed for another patient.

I was sent to the discharge lounge around about midday, but I could not be collected until after 6pm as I didn’t have transport until that time. Anyway, the medications from the pharmacy were not sent out until about 5pm. So I had to sit in the Lounge with my urinary catheter for six hours and then be driven 70 miles home (another three hours) to my home near Bradworthy. This is not an ideal circumstance for anyone who has had major surgery and led to some bleeding from my urinary catheter that night.

When I left hospital, my discharge summary noted that my urinary catheter should be reviewed in two weeks time at a North Devon TWOC clinic and stated that the urology secretaries had been sent copies of the letter.

After nearly two weeks, I had heard nothing from North Devon Hospital about a TWOC clinic, so I had to telephone the hospital. When I finally got through to the urology department (the automated hospital switchboard is inclined to offer you the neurology department in preference, which might be more help when you start banging you head on the wall in frustration), they said they had no record of me and no knowledge of any appointment (said the first possible appointments wouldn’t be until June) and suggested contacting my GP.

After my wife and I had made some further enquiries, my daughter, who is a pharmacist, took over. In all, she made 32 phone calls, taking all day, to try and find out where and when the catheter should be removed. No one wanted to do it, because of the problems two weeks earlier.

Eventually, I was referred to the district nurses at Holsworthy Hospital (which is only 10 miles from home), who removed the catheter in mid-May. This was done on the understanding that I returned four hours later for a scan, which if it showed a build up of urine in the bladder, would mean that I might need to go to North Devon Hospital to have the catheter replaced. Fortunately, this was not necessary and I am extremely grateful to the sympathetic and efficient attitude of those nurses.

If we had not pursued this issue, I would still have had the catheter when I finally saw Mrs Darvall again at the follow up vascular clinic at Bideford Hospital in June.

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Responses

Response from Isobel Boobyer-Jones, Patient Engagement and Involvement Manager, Patient Experience and Engagement, Somerset NHS Foundation Trust 4 days ago
Isobel Boobyer-Jones
Patient Engagement and Involvement Manager, Patient Experience and Engagement,
Somerset NHS Foundation Trust

I make sure that patients, families, carers, and the public have a real say in how healthcare services within our Trust are shaped and improved. I listen to feedback, gather insights from patient stories, and work with teams to make changes that really matter to the people using our services. I use platforms like Care Opinion to understand experiences—what’s working well and what could be better—so that we can keep improving care in a way that truly puts patients first.

Submitted on 25/06/2025 at 15:20
Published on Care Opinion at 15:20


picture of Isobel Boobyer-Jones

Dear welltravelled,

Thank you so much for taking the time to share your detailed experience following your vascular surgery at Musgrove Park Hospital. We are truly grateful for your thoughtful reflections and commend the clarity with which you’ve shared both the positives and the challenges you faced during your care journey.

It’s lovely to read your praise for Mrs Darvall and her team, and we’re pleased that you felt reassured and well-supported over the years. Your kind words about the surgical and ICU care will mean a great deal to the staff involved and we’ll make sure your feedback is passed on.

I am, however, very sorry to hear about the difficulties you encountered following your transfer to Montacute Ward, and later during your discharge process. I am also sorry to hear about the repeated issues with catheter management, the delays in receiving your medications, and the distressing discharge experience.

Thank you for sharing the details of your discharge experience. I understand that spending several hours in the Discharge Lounge with a urinary catheter in place, followed by a long journey home, must have been extremely uncomfortable, particularly after major surgery. Waiting until late afternoon for your medication and then travelling such a long distance while still recovering is not an experience anyone would hope for. Your reflections highlight how important it is that the discharge process supports patient comfort and wellbeing, and your feedback will help us consider how this part of the patient journey can be improved.

I recognise how frustrating and inconvenient it must have been to face a breakdown in communication around your follow-up care, especially when trying to arrange your TWOC appointment. Experiences like this can be incredibly difficult, particularly after undergoing major surgery, and we really appreciate you sharing this part of your journey. It's clear that you and your family had to do an extraordinary amount of chasing to get the care you needed, something that should never be the responsibility of a patient. I understand how frustrating and exhausting this must have been and apologise for the stress it caused.

Thank you for raising these issues in such a thoughtful and constructive way. Your feedback provides valuable insight, and I will ensure it is shared with the relevant teams to help inform improvements.

Wishing you continued recovery.

Kind Regards

Issy

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by welltravelled (the patient)

To: Isobel Boobyer-Jones.

Dear Issy,

Thank you very much for your response to my story.

Kind regards,

Welltravelled.

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