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"Medical breastfeeding journey"

About: Maternity care / Johnston House Royal Belfast Hospital for Sick children Royal Jubilee Maternity services / Neonatal Intensive Care Unit (NICU)

(as a parent/guardian),

Our baby boy was born at 28 weeks with CHD. Whilst his condition has limited and changed our expected breastfeeding journey, I have been pleasantly surprised by the encouragement of staff across the maternity and children’s hospital. All have been very positive and supportive to enable me to pump and facilitate comfort feeds as he got older and stronger. 

On Johnstone Ward, Gemma was an incredible support in the first few days. Her knowledge, calm nature and hands on help was invaluable as I started exclusive pumping. I was shocked there was no role of a breastfeeding support worker in the ward setting as she is an invaluable resource to the team and such a positive influencer for breastfeeding, which is sorely needed in NI. I really missed her support on the shifts she wasn’t working, and can imagine many parents give up early on without hands on support. 

Following on in NICU and HDU, I met Gillian and Barbara who imparted their wealth of knowledge as I was pumping. Although our baby couldn’t be fed orally due to his prematurity, knowing I could still access advice was great. 

As he’s now moved over to the children’s hospital, we are able to offer some comfort breastfeeds alongside tube feeding. The atmosphere surrounding pumping and breastfeeding remains positive, however, more options for support from the feeding team would enhance the experience. Those of us who have experienced a turbulent journey starting out with breastfeeding or pumping, with babies who are spending the first few months of life on the ward, would really benefit from a dedicated feeding service or outreach support worker within the children’s hospital. The feeding team from maternity continue to offer advice but their services are in high demand and there is a clear need within the children’s hospital for increased provision. The benefit to children and parents would be immeasurable. 

We are immensely grateful to the entire team and every member of staff we’ve encountered along the way for their care of our son, thank you. 

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Responses

Response from Gillian Weir, Neonatal Infant Feeding Lead, RJMS & RBHSC, Belfast Health and Social Care Trust 2 months ago
Gillian Weir
Neonatal Infant Feeding Lead, RJMS & RBHSC,
Belfast Health and Social Care Trust
Submitted on 03/06/2025 at 13:26
Published on Care Opinion on 04/06/2025 at 07:42


Dear Clare100,

Congratulations on the birth of your son and thank you for taking the time to provide us with such lovely feedback. We are delighted to hear that your breastfeeding experience has been positive despite the challenges you have faced, and that you have felt well supported within the Maternity and Neonatal services. We will pass your feedback on to our teams. It is wonderful to hear that our lovely Gemma had such a positive impact upon your care and we will ensure that she is made aware of this. She is an extremely enthusiastic and dedicated member of our team and her passion for supporting breastfeeding shines through at every opportunity.

Within the Maternity and Neonatal services, we continue to explore further ways to improve our breastfeeding/ expressing support.

As Infant Feeding Leads, we acknowledge that there is no dedicated breastfeeding support available in the Children’s service and that the support available from us is often limited due to demand within the maternity/ neonatal settings. We are encouraged to hear that staff in the Children’s Hospital continue to encourage, support you in your breastfeeding / pumping journey, and appreciate that additional dedicated support would be welcomed.

We hope that your son will soon be well enough to go home and send our best wishes.

Barbara ad Gillian

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