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CAMHS Intellectual Disability

Posted By Simon125

"CAMHS Intellectual Disability"

About: Lothian Community Services / CAMHS Community Teams

(as a parent/guardian),

As this is on going we feel as a family we are constantly fobbed off and not well supported at all.

We can call about our sons needs only to be told we will get a call back but usually never happens and we have to constantly chase.

Even although he has been prescribed medication by only this team.

As recent behaviours have obviously been caused by last medication change and is now starting to affect many factors, family life, school life ,and just life in general we have called a few times of recent and were told we would get a call yesterday but are still waiting as usual, this is just not acceptable at all.

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Responses

Response from Danielle Shearer, Business Manager, Royal Edinburgh & Associated Services, NHS Lothian 2 months ago
Danielle Shearer
Business Manager, Royal Edinburgh & Associated Services,
NHS Lothian

Submitted on 21/05/2025 at 15:01
Published on Care Opinion at 15:01

Dear Simon125

We are really sorry to hear about your experience. Your feedback is important to us, and we would like to address your concerns as soon as possible.

Please get in touch with our Patient Experience Team by sending an email to LOTH.Feedback@nhs.scot and make reference to this Care Opinion story. They are dedicated to helping us resolve any issues and ensuring you receive the best care possible.

Thank you for bringing this to our attention.

Danielle

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Simon125 (a parent/guardian)

To be honest this response just feels like a pass the buck and not really helpful at all!

Update posted by Simon125 (a parent/guardian)

Again tried contact 4 times this month only to be told we would get a call back, I am really starting to think this service is an absolute joke

Response from Mariska Vernon-Stroud, Patient Experience Team Lead, Patient Experience Team, NHS Lothian 3 weeks ago
Mariska Vernon-Stroud
Patient Experience Team Lead, Patient Experience Team,
NHS Lothian

I gather feedback from patients to recognise good practise and supporting improving services in NHS Lothian.

Submitted on 23/07/2025 at 16:05
Published on Care Opinion at 16:05

Dear Simon125,

Thank you for reaching out again and I am sorry to hear you are continuing to have difficulty contacting the team. Can I ask you to contact the Patient Experience Team, quote this story and leave your name and contact details. I can then pass these on to the team who will contact you to discuss your concerns. Please contact the Patient Experience team by email LOTH.feedback@nhs.scot or by telephone 0131 536 3370 (M-F, 9am-2pm).

Thank you,

Mariska

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
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