When I first was informed about my illness I didn't take it in, I wasn't informed how this would affect my life as people had different effects from it. I was given a consultant who I met with about twice a year.
The consultant couldn't give me any advice how to deal with the affects of this illness, the meetings I had were only to I inform them of the way I had been and how I was progressing, nothing about how to slow the progressing of my illness.
I have had feed back from the Occupational Therapist and help with my illness along with the physical health care worker. I have had to buy myself certain adaptations as my legs and arms have gotten weaker over the last 3 years so I am now dependent on my Wife to do everything for me as I am unable to attend to myself.
My Consultant finally told me what my future would look like, in a few years time I might be bed bound unable to facilitate anything for myself.
"My infusion body mysosis journey"
About: Adult Health & Support Services / Occupational Therapy Adult Health & Support Services Occupational Therapy ML3 0AA University Hospital Hairmyres / Neurology University Hospital Hairmyres Neurology G75 8RG
Posted by Richardrmx25 (as ),
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