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"Guidance and support following my husband’s diagnosis of Parkinson’s."

About: Countywide Community Care Service Delivery Unit / Integrated Neurology Service

(as a carer),

My husband was diagnosed with Parkinson’s 3 years ago. We had lots of involvement from different people, it was all very confusing. Then we met Kim, Sister in Complex Neurology from the Worcestershire Integrated Neurology Service. She has been our saviour. She helped us make sense of all the different aspects of the Neurology Service.

Throughout our journey she has been the one constant person we felt we could rely on. She visits my husband at home about every 6 months and if we have a query in-between visits I can email her and she will get back to me as soon as she is able. She is amazingly quick and efficient at referring my husband to other relevant services and explaining what they do.

Kim ensures my husband gets everything available to suit his particular needs - OT, Physio, SALT, HASE, Hospice support, Parkinson’s nurse input. She draws it all together to produce an individualised care plan for my husband. She always works in a totally person-centred way. She gives us hope.

She noticed when, as my husband’s carer, I was struggling emotionally and helped me find support for my mental health. We could not bear to think of life without Kim, she treats us as equals. She is our rock and empowers us to get the best possible outcomes from a confusing range of services.

She has a sense of humour, which she uses appropriately to persuade my husband into the best courses of action. She is very knowledgeable but not afraid to say if she needs to find out. Above all, she cares and it shows.

We feel we are not just numbers on her heavy case load. Over the last three years there have been times when I don’t think we’d have made it if it wasn’t for Kim.

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Responses

Response from Christina Whittenbury, Service Lead, Integrated Neurology, Herefordshire and Worcestershire Health and Care Trust 5 months ago
Christina Whittenbury
Service Lead, Integrated Neurology,
Herefordshire and Worcestershire Health and Care Trust
Submitted on 19/05/2025 at 17:06
Published on Care Opinion on 20/05/2025 at 08:01


picture of Christina Whittenbury

Thank you so much Gillyflowerz, for taking the time to post this feedback.

It is wonderful to read what a positive impact that Kim has had on you and your husband as you navigate his diagnosis and the impact of this on both of you. It is wonderful to hear that this has been evident in both in the care and support she gives to you as well as in empowering you both to steer your way around the complex services available.

I have shared this with Kim as it is so important for her to hear such wonderful feedback about what an amazing job she does.

I am immensely proud, as the lead for the Integrated Neurology service, that this is the care you have received from our team and want to thank you again for sharing.

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