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"Suffering from long COVID"

About: NHS Greater Glasgow & Clyde / Long Covid Service

(as the patient),

Immersive Reader

I felt the suffering from Long Covid and Post Viral Fatigue had taken control of my life. I had become very bitter and depressed at the situation. Although I wasn’t “suicidal “ I was having very dark thoughts and could see no light at the end of the tunnel unless it was the train coming towards me.

I was very sceptical of accepting help from Long Covid Service and I would previously have ridiculed a man my age who required this help.

I was taken on a step by step journey by my Key Worker Lilian who patiently guided me through the process of finding the best possible path to improve my quality of life and address my unrealistic expectations.

I can say with certainty that I owe this service everything. I am prone to exaggeration however I feel the best analogy I can give is this service and Lillian in particular have given me the opportunity to have a life I would not have in the same way quadruple bypass patients feel after successfully rehab.

I have been able to accept my disability and look to the future thanks only to this service. Every single aspect of my life has been improved by the service provided and I know without doubt I would be in very very serious physical and mental distress had the service not been available. I have had to be able to live a completely different lifestyle and this would have been impossible without the support care and understanding provided by the Long Covid Service.

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Responses

Response from Kevin Torbet, Admin Assistant, Patient Experience and Public Involvement, NHSGGC 2 weeks ago
Kevin Torbet
Admin Assistant, Patient Experience and Public Involvement,
NHSGGC
Submitted on 16/05/2025 at 10:49
Published on Care Opinion at 10:49


Immersive Reader
picture of Kevin Torbet

Dear foxtrotxn85

Thank you for sharing your powerful and deeply moving experience with the Long Covid Service. Your honesty and openness about the impact of Long Covid and Post Viral Fatigue—and the journey you've taken—will resonate with many others facing similar challenges.

We're truly heartened to hear that the support from your key worker, Lilian, made such a profound difference in your life. It’s clear she provided not just professional guidance but also compassion and understanding at a time when you needed it most. We'll ensure your kind words are passed on to her and the wider team who I'm sure will be as touched as I was to read your lovely feedback.

Long Covid can be an isolating and life-altering condition, and it’s our aim to support every individual not just in managing symptoms, but in rebuilding their sense of hope and purpose. Your story is a powerful reminder of this.

We wish you continued progress and strength on your journey ahead. Thanks again this really means a lot to the staff.

Kind regards

Kevin

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