"Diagnosis of Facial Palsy"

I was recently  referred by my GP to ENT Rapid Access in CAH due to reduced hearing, fluid in middle ear and facial weakness on one side. I was seen on the same morning by a registrar within ENT Rapid Access and diagnosed with facial palsy, most likely caused by acute otitis media. I was prescribed steroids, advised that recovery can take 3-6 weeks or up to 6 months.

I received a follow-up appointment 6 weeks from initial presentation, and was seen by a specialist registrar (within Dr Reddy's Clinic). Whilst my hearing and middle ear issues had resolved, my facial palsy had no improvement. As a result, the registrar referred me for an MRI, and I received a cancellation appointment 3 weeks later. I was attending a Facial Palsy event and spoke with Mr Leonard (ENT Consultant, BHSCT) who has moved me to his Clinic and shared MRI Results.

As I have now transferred to BHSCT, I wanted to share my reflections of my involvement with ENT in CAH. I am very happy with the medical care provided from initial diagnosis, treatment, timely review and taking steps for further investigation when slow recovery was identified. I hope this early intervention assists my long term recovery.

I have heard many stories of people in Northern Ireland and across the UK who have had a bad experiences due to misdiagnosis, slow medical intervention and lack of investigations, and I feel my experience has been mainly positive. However, I also wanted to share some things that would have made my experience better.

Only a little explanation of facial palsy was shared at my initial visit, it would have been helpful to have been provided with further information (e.g. leaflets, eye care advice) and/or directed to resources (e.g. Facial Palsy UK). The initial presentation of facial palsy can be stressful and it can be difficult to take on board information shared at initial appointment and being directed to other resources to access at home would help alleviate some of the stress. There is important information with regards to not undertaking exercises on the face in the early stages as well as lots of instructional videos for massage, eye taping, etc. Facial Palsy UK also provides a lot of support for patients as the physical effects of facial palsy can be emotionally challenging and sharing these resources with patients on first diagnosis can make a positive impact.

I feel that ENT Rapid Access (and other departments where a facial palsy patient may receive their diagnosis) should ensure information and support resources for facial palsy are shared with the patient.