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"I feel the communication with me hasn’t been good"

About: Victoria Hospital / Renal Victoria Hospital / Rheumatology

(as a service user),

I attended a private GP because I had multiple symptoms including fevers in which the GP did autoimmune testing. I was told by the GP that the PR3 antibody was positive which was suggestive of vasculitis.

I was then referred to Rheumatology and seen promptly and had an in depth consultation, blood tests and x-ray. My Immunoassay was being tested and awaiting results.

I was informed by the private GP that my results were now suggestive of localised vasculitis. I spoke to the Rheumatology consultant on the phone and wait to see Renal. I saw Renal consultant and had some more blood tests and will be followed up in 4 months time. 

The laboratory had communicated with the private GP to inform that my bloods were suggestive of localised vasculitis. I feel that this is being disregarded, I don’t feel the communication has been great as to whether I have vasculitis or not or why the laboratories would say it was indicative of localised vasculitis. I’m still having fevers on a daily basis and feeling very confused as to where I’m at. I feel the communication with me hasn’t been good. 

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Responses

Response from Lynne Campbell, Lead Nurse, Rheumatology & Sexual Health, NHS Fife 2 months ago
Lynne Campbell
Lead Nurse, Rheumatology & Sexual Health,
NHS Fife
Submitted on 09/04/2025 at 08:54
Published on Care Opinion at 08:54


picture of Lynne Campbell

Dear travellertj94,

I am sorry to hear of your experience of the Rheumatology Service. As a service, we would expect that patients are given clear communication around their management and next steps, so I am disappointed that this has not been the case.

Please contact me directly so I can help provide a satisfactory resolution. I am available Monday to Friday, 0800 till 1645 on 01383 623623 Ext 29238

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Update posted by travellertj94 (a service user)

Thank you, Lynne Campbell for taking the time to look into this after I contacted you. After our discussion I’m now fully understand the outcome of the consultation. This may have been an error on my part, due to the in depth consultation I received from the consultant, therefore I’d like to make a suggestion, the first consultation is in-depth and maybe copying patients into the letter sent to the GP would help patients remember the consultation. Again, thank you for your time in speaking to me.

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