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"I feel more prepared to face the future"

About: North Devon District Hospital / Parkinson's Service

(as the patient),

I am recently diagnosed with Parkinson’s. My partner & I were given the opportunity to attend the Power Up! Programme in Barnstaple for which I am very grateful. It provided an opportunity to meet with other people in the same situation without facing idle curiosity or pity. In turn the group & staff members provided support & encouragement to challenge myself to improve my health, strength, flexibility & awareness of what to expect as the condition progresses. This should also help me discuss symptoms &needs with medical professionals as the situation changes.

My main concern is around motivation to maintain the activities once the programme ends. I appreciate the additional fitness & Pilates sessions on offer but the distance from my home make them less accessible. I try to exercise at home but having a group of like minded colleagues does seem to improve my commitment level.

Suzanne & Bea are committed to ensuring that everyone makes steady progress during the programme & provide encouragement to push a little harder & to try new activities. Remembering specific exercises is difficult but where possible routines have been repeated & we have been provided with links to aide memories. The exercises have shown that we don’t need a lot of expensive equipment or clothing. It would have been useful for my partner to have taken part in the exercises which would have increased the likelihood of remembering how exercise.

As a result of this programme I feel more prepared to face the future & less like a jellyfish being tossed around in an ocean totally out of control. I may not be able to dictate how my Parkinson’s develops but I am more confident that I can have some influence over my progress. Thank you.

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Responses

Response from Suzanne Seymour, Parkinson’s Specialist Physiotherapist (Northern Services), Neurology (Northern Services), Royal Devon University Healthcare NHS Foundation Trust 2 months ago
Suzanne Seymour
Parkinson’s Specialist Physiotherapist (Northern Services), Neurology (Northern Services),
Royal Devon University Healthcare NHS Foundation Trust

Parkinson's Specialist Physiotherapist.

Submitted on 14/03/2025 at 14:13
Published on Care Opinion at 14:17


Thank you for taking the time to give such detailed feedback about Power UP! I am so pleased that you feel empowered and resourced for the future. This is exactly what the course hopes to achieve for everyone.

I appreciate that distance from the exercise groups, that are supported by the local Parkinson's UK branch is a barrier for people to access exercise. We continue to work with the branch to see how we can support specific exercise classes in the more rural locations. Thank you for your suggestion about involving partners in some of the exercise sessions to help with motivation at home. I will add it to the plan of improvements. Many thanks again.

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