Text size

Theme

Language

"Hypothyroidism, medication, blood tests"

About: General practices in Greater Glasgow & Clyde

(as a service user),

If I felt myself getting the symptoms of hypothyroidism with my medication at 140mcg, why would I then lower the dosage to 125mcg?

Is it because this fits with the dosage in which the tablets are supplied, which are 25mcg (the tablet measures around 6mm wide, please consider that when trying to cut tablets and weighting them on a jeweller's scale trying to get a lower dosage), 50mcg, 100mcg?

Did those suggesting such a drop in dosage consider the impact on my health and ability to cope, living with hypothyroidism symptoms including risks of accidents?

I refused to drop the dosage down to this lower dosage level.

I was diagnosed with hypothyroidism back in 2004, so I have been on medication for about 20 years. It is not easy getting the dosage at a satisfactory level that suits the safe parameters of blood tests and that doesn't leave patients such as myself feeling that they are getting symptoms of either being too low or getting too much medication.

I started getting the symptoms of hypothyroidism back in September 2024 again when I was on 140mcg, so I then slowly raised the dosage. I found 150mcg too low and 160mcg too high. It felt that around 156mcg was about the right level. It is very difficult to get accurate dosages using a jeweller's scale and a tablet cutter, however I had managed before to get it within the blood tests parameters using these.

Unfortunately, blood tests showed 156mcg to be too high. This was when I got a message from a member of staff at the practice and it was suggested that I drop down to 125mcg. I told them no, that I wouldn't drop it down to that level and also I didn't want to speak to the doctor, because it would result in an argument.

My fear about any discussion with the doctor resulting in an argument comes from pervious past experiences with other medical professionals.

Although I have been a Patient at this GP practice for over a decade, there have been quite a few staff changes, and I feel that a lot of the staff don't know me and I don't know them. I don't even know if they have a female GP currently working at that GP practice.

I want clear information and communication so that I can make informed decisions.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 2 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 24/02/2025 at 10:13
Published on Care Opinion at 10:13


picture of Nicole McInally

Dear nmd

Thank you for taking the time to share your feedback. I am sorry to hear of the difficulties you are experiencing with your GP and your concerns regarding your hypothyroidism medication.

GP practices are independent contractors, and each has their own system for managing feedback, concerns, and complaints. They are not registered to respond to feedback received via Care Opinion. Therefore, I would suggest contacting the Practice Manager to discuss your concerns.

If you don’t feel comfortable doing this or want assistance navigating complaints and feedback processes, the Patient Advice and Support Service (PASS) may be able to support you. This is an independent and confidential organisation. PASS can help you give feedback, raise concerns, or make a complaint about any health service, including GP practices. You can contact the Patient Advice and Support Service either by calling on 0800 917 2127 (office hours) or through their website: https://pass-scotland.org.uk/

Thank you

Nicole

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by nmd (a service user)

Dear Ms McInally,

Thank you for your response.

On balance my GP Practice had served me fairly well for a number of years, however I am now witnessing a tendancy to what I call "conveyor belt", "fit into service criteria" type of care creeping in. Given the pressure right across the health and care sector this may just be how things are.

Having carefully considered my situation, I have decided I am probably better moving to another GP Practice.

Thanks for the information. I may write to my old GP Practice after I have moved to another GP Practice.

Regards,

nmd

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 2 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 26/02/2025 at 13:58
Published on Care Opinion at 13:58


picture of Nicole McInally

Dear nmd

I am sorry to hear that you are considering moving to a new GP Practice. If you feel able, I would write to your Practice Manager so that they are aware of the issues you have encountered and how these have affected you.

Best wishes

Nicole

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by nmd (a service user)

Thank you Ms McInally. I have moved to another GP Practice and I am still yet to write to the Practice Manager at my former GP Practice.

There is generally too much pressure being put on the NHS and NHS staff, particularly at GP and primary care levels.

The I first time I mentioned that I had adjusted my level of medication for my thyroid condition was late last year when I had gone to my former GP's Reception. I also at this occasion had made a request for more HRT medication.

I was advised by the member of staff on duty at the Reception to use the Repeat Prescription Forms available to request more HRT medication and also to write on it about the adjustment I had made to my thyroid medication.

A few days later I went to pick up the actual prescription for the HRT medication, however no one mentioned or got in touch with me regarding the adjustment I had made to my thyroid medication. I regard this as a missed opportunity by my former GP Practice to effectively engage with me.

Opinions
Next Response j
Previous Response k