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I had no direct line or way to communicate with a nurse

Posted By irregularityhz55

"I had no direct line or way to communicate with a nurse"

About: Neurodiversity Services / Rotherham ADHD team

(as a service user),

I couldn’t take the call from my nurse (earlier than the time stated) then moved house and missed the letter chasing up my appointment and saying I would be dismissed from the service if I didn’t respond within 21 days. It was also the Christmas period and was extremely stressful for an autistic person and family.

Calling through was not easy and I was told I would be called back the next day but nobody did so I had to keep chasing this up. I was extremely stressed and anxious. I had no direct line or way to communicate with a nurse and had to stop taking my meds due to horrific headaches. I just wanted to speak to my nurse but she had called me too early for me to be able to answer.

Also, at the ADHD clinic, at Ferham clinic, the radio is extremely stressful. I am autistic and the adverts and people talking makes me overstimulated and I really struggle to cope while I’m waiting.

The nurses are lovely though and I really appreciate them and the amazing job they do.

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Responses

Response from Jo-Ann Yates, Team Manager, ADHD & ASD Services, Neurodiversity Directorate, ROTHERHAM DONCASTER AND SOUTH HUMBER NHS FOUNDATION TRUST 4 months ago
Jo-Ann Yates
Team Manager, ADHD & ASD Services, Neurodiversity Directorate,
ROTHERHAM DONCASTER AND SOUTH HUMBER NHS FOUNDATION TRUST

Submitted on 03/03/2025 at 10:58
Published on Care Opinion at 10:58

HI I am Jo the Manager for the Team. Firstly can I take the time to thank you for completing the care opinion form in regard to feedback regarding your engagement with the team.

Secondly I would like to apologise for the disruption you encountered whilst sitting in the reception at Ferham waiting for your appointment. I would like to offer you an explanation as to why the radio is always playing in the background in the reception area. there are several teams based in the clinic who all have clinical rooms where they see patients for their appointments. Sometimes conversations have been known to be overheard by patients waiting in reception especially if a patient is unhappy or upset with their treatment etc. Therefore, following discussion with the various teams the collective solution was to play the radio to prevent this occurrence from happening in the future in conjunction with preserving everyone's confidentiality.

Lastly I would like to again apologise for the lost/miscommunication with your appointments and subsequent 21 day letter. It must of been very frustrating with telephone calls being unanswered or missed by yourself and the Nurse in the team. I hope your concerns around your medication have now been addressed. If not could you please email me at rdash.neurodiverse-team@nhs.net. With your name and date of birth I can then review your record and update you with any outcome.

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