Every month since before Christmas I have received a letter about an MS review. At first I thought this is good because I had a few issues I.e multiple falls that I felt needed addressing. Then a first cancellation came, followed by a second then a third. I phoned my neurologist secretary who was extremely helpful. She reassured me that I would get an update from her, as promised phoned me following day. I was informed an urgent review was needed and a date was given. So I took it. I may as well stood on my head because yet again this agreed appointment was cancelled. An appointment call handler gave me another appointment date so yet again I took the date. What else have I got to lose.
During this whole process, I haven’t heard from anyone reassuring me about my MS. I only see a general nurse for blood tests. Everyone is very aware of a crumbling NHS system but what is happening is frightening. How do I know if everything is working properly when I am newly diagnosed. I don’t know what to expect.
"Cancellation after cancellation"
About: Neurology / Multiple Sclerosis Team Neurology Multiple Sclerosis Team Newtownards BT16 1RH
Posted by Bumblebee93 (as ),
Do you have a similar story to tell?
Tell your story & make a difference
››
Responses
See more responses from Annemarie Hunter