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"Autistic person trying to make an appointment"

About: Royal Devon & Exeter Hospital (Wonford) / Therapies

(as the patient),

I rarely use the telephone as I find it stressful. There is no email or text facility on your letter, which only gave a telephone number. There was no address either and your website confusingly gives hospital addresses as East or West- so it took quite a while to figure out the right location. Even then, there was no email or textphone. 

I eventually discovered the location and called  (as no email or texpthone facility), but it was an answerphone. I tried again later - same thing. Being stressed, I called the main switchboard and the operator kindly gave her email and said she would print my email and send it to physio. A day later, no response, so I called that night when I felt calmer, yet again explaining autism and the switchboard operator's note. This am I finally received an appointment date and time - but asking me to ring if it was inconvenient...

Please give your staff autism disability training. Consider non verbal patients and autistics who only use email or text. It is no different to blind people needing aids to get around. We are not difficult nor unintelligent (common misperceptions). You need to offer alternatives in your letters also the location address. Also put the addresses or even just the postcodes on the website, not just East or West, which is confusing for new patients.

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Responses

Response from Teresa Sturm, Matron, Patient Experience Team, Royal Devon University Healthcare NHS Foundation Trust 8 months ago
Teresa Sturm
Matron, Patient Experience Team,
Royal Devon University Healthcare NHS Foundation Trust

My role as matron in the patient experience team covers both northern and eastern services at Royal Devon.

Submitted on 31/01/2025 at 15:34
Published on Care Opinion at 15:34


picture of Teresa Sturm

Dear Marn71,

Thank you for sharing your story with us. I am really sorry you have found contacting us stressful. I would like to reassure that staff at Royal Devon complete the Oliver McGowan training on Learning Disability and Autism and I would advise you bring a completed health passport with you to hospital appointments.

Your feedback is really valuable and I will share your story with the senior patient experience team and the comms team that manage the website.

I am currently working with services across the organisation to update letter templates to include a contact email for patients along with a telephone number and full address. This is a work in progress as we update letters for all departments but certainly a priority for us.

You can also sign up to My Care to access your health information and view some test results and communicate with us. For more information on signing up please click here

I hope this provides some reassurance that we are working hard to improve. As care opinion is anonymous please you could email the patient experience team some more details of the department you were trying to contact so we can follow this up with the manager and check their letter template. Our email address is rduh.patientexperience@nhs.net

Thank you,

Teresa

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