"Struggling to support my daughter"

Daughter attended concert with her boyfriend last Dec. She woke up at 1 am in the morning and seemed to be having a seizure, never had before.

Her boyfriend attended A&E with her, she had a CT scan done and thought to be normal. Discharged after hours in A&E, with view to seeing her GP to refer for urgent neurology appointment.

When seen by her GP, informed that it would take about 9 months for emergency assessment. As her mother and a nurse this was unacceptable for a young person to wait this time, given her other symptoms which of which  there are many, including loss of ability to walk and also loss of speech.

To cut a long story short and this is incredibly upsetting even to write, I had to seek private health support as my daughter was struggling emotionally as I was. It's now over a year since she first became unwell with this neurological condition, she has no support from her GP or consultant, in fact he called to say there is nothing they can do as she is now diagnosed with functional neurological disorder.

She lost the job she had and I have struggled to cope and support her as a mother. There seems to be  a complete lack of understanding and research of this condition. Her GP recently thought that she had had a stroke.