My son was first admitted at PICU royal hospital for children Glasgow due to noisy breathing in September 2024 a week after he got his one year immunisation. About two weeks later, he was discharged from PICU to ward 1E, while there, a certain medical personnel came in around second week of October with a form which they urged me and my husband to sign stating that it was to get our consent for the research team to carry a 20 hours long research using my son blood and DNA.
We weren't allowed time to read the details contained in the form properly and we are now no longer comfortable for any further research to be carried on our son, hence the reason we decided to use this platform to withdraw our consent.
Furthermore, 3 weeks after my son was discharged, he started showing some symptoms and was brought back to the hospital as was advised. Two days later, he was given a new medicine which dropped his BP rapidly and he became so unwell same day that he was rushed to PICU, he however survived by God's grace having been through intubation and ecmo until the consultants told us he was going to pass in November.
Our concern now is after all our son have been through, he is recovering fast and does everything he would normally do for about a month now but he is still in the hospital with different medicine being tried on him. We were told that there is no medicine that treat the condition they diagnosed on him (mayocardiatis). Therefore, we won't like any further increased dose of the medication he is currently receiving or another one which might land him again back to PICU. We will rather have him discharged, than back to PICU. Thanks for your understanding.
"Withdrawal of consent for research"
About: Royal Hospital for Children (Glasgow) Royal Hospital for Children (Glasgow) Glasgow G51 4TF
Posted by zebrabk73 (as ),
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