"Still no further forward with a supportive solution"

Nearly 6 weeks after being dismissed by Rheumatology service yet again I’m still no further forward with a supportive solution outcome discussed.

With yet another referral from my GP to rheumatology department in November because of my worsening symptoms.

Discussion about my symptoms which involve my joints, muscle, skin and blood vessels have taken place within the department without my involvement or input which I would have liked to be apart of as it’s me this is all happening to and just to have been given the opportunity to actually have the clinical lead consultant and the consultant see my worsening symptoms in person rather than in pictures, which I feel is a supportive solution.

The physical and mental toll of being constantly dismissed by different department including dermatology and rheumatology especially when I finally had hope in August after the consultant seeing the Erythromelalgia for themselves which at that time was only affecting my right hand and feet that maybe someone now was listening to the worsening symptoms I have had for about a year that trials of treatment/ medication may have been started to see if they could have improve my symptoms and maybe given me back some quality of life but sadly this never happened.