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"Received some very useful information"

About: The Ulster Hospital / Paediatric Outpatients

(as a parent/guardian),

Had a great experience seeing Dr Glancy and specialist nurse Barbara earlier this week at UHD Paediatric Outpatients. They were both very professional and approachable. Barbara was great fun and our daughter is still talking about her now.

I had little expectation of the appointment, considering peanut allergy is usually a lifelong condition with no real cure or treatment. I could not be more wrong. We have received some very useful information which would make a crucial difference if our daughter had anaphylaxis again and I now feel very confident managing her allergies. 

Five star service for sure, but with one significant pitfall - the waiting list. It took us almost 2 years to get to the end of the "urgent" waiting list. Yes we spoke to the GP and yes we had an allergy action plan and adrenaline pens while we were waiting for the appointment, but all in all I think that if our daughter had had anaphylaxis we would probably have struggled to identify it and would have been lacking confidence to manage it effectively in a timely manner. Luckily she did not have a reaction within the past two years, but the thought of it and what could possibly happen is scary. 

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Responses

Response from Karen Orr, Interim Lead Nurse, Woman & Acute Child Health, South Eastern Health & Social Care Trust 6 months ago
Karen Orr
Interim Lead Nurse, Woman & Acute Child Health,
South Eastern Health & Social Care Trust
Submitted on 05/11/2024 at 17:49
Published on Care Opinion at 17:49


Dear Smartul

Many thanks for your lovely feedback regarding your daughter's attendance at the Allergy Clinic; your opinion really matters to us.

Having a child with a peanut allergy can be very daunting and often causes great anxiety. As a team, we always strive to ensure that our care is patient-centred and of high quality, and I am glad that this was your experience.

The demand for allergy services is very high and waiting times are significantly longer than the Trust would wish for our patients and families. I am sorry for the impact this has had on your daughter and am so glad that she has not had a significant reaction whilst waiting to be seen.

I'd like to wish you well for the future and trust that you know you can make contact with the Allergy team if you have any concerns at any time.

Kind regard

Karen

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