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"Adult autism assessment"

About: Mental Health / Adult Autism Services

(as the patient),

I went through an ASD assessment. On the third appointment the clinicians decided that I didn’t fit within the ASD category because I looked at people in the eye, could follow a conversation and could imagine a story when given a book with images. I believe the Adult Autism Team should update their criteria regarding the diagnosis of this condition. They should know what masking is among other things. As an older adult, I believe that I learned to hide my difference by trying to conceal my symptoms for a long time.

Nobody wakes up one day and decides - oh, I believe I'm autistic. I firmly believe the diagnosticians must have access to the latest findings and up-to-date tools to properly diagnose a neurological condition as ASD or any other. Unfortunately, that was not the case of the Adult Autism Team, I feel they limited their assessment to following a very obvious script in which a lack of spontaneity and flexibility was evident. 

I felt that after the second  meeting they had already made up their mind regarding my diagnosis. It was I who had to contact them in order to know when our next meeting would be, and although the first two meetings had been very close in time, the third meeting was scheduled to be more than a month after the second meeting with all the uncertainty that caused in me.

I must insist on the fact that the Adult Assessment Team should  be better instructed and updated. In my view,  to tell a person who might be in the spectrum that he/she is not autistic because he/ she can look at people in the eye is utterly disrespectful because that shows their ignorance in respect to well-known facts such as masking in people with ASD, as I mentioned before. Especially in older adults who must find ways to deal with a world which is completely foreign to them.

I must add that regarding my sensory issues like sound, the Adult Autism Team recommended me to wear headphones. They also instructed me to contact my GP again, hinting that something was in fact wrong with me but that they knew it wasn’t autism. Besides, they also said that I might be traumatised by my childhood because my granny spoilt me rotten and then she died when I was 7.  And that the rest of my siblings were treated differently (better than me ) by our mother. Could this be taken as a serious diagnosis? I certainly don’t believe so. 

Thank you for allowing this platform to allow us to voice our impressions and experiences.

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Responses

Response from Tom Kelly, Head of Adult Services: Learning Disability and Recovery, East Renfrewshire Health & Social Care Partnership 7 months ago
Tom Kelly
Head of Adult Services: Learning Disability and Recovery,
East Renfrewshire Health & Social Care Partnership
Submitted on 03/10/2024 at 16:19
Published on Care Opinion at 16:48


picture of Tom Kelly

Dear Spe63,

My name is Tom Kelly and I am Head of Adult Services: Learning Disability and Recovery for East Renfrewshire Health and Social Care Partnership.

Thank you for taking the time share your thoughts on your experience of our Adult Autism Service. The team always welcome feedback and I am sorry to hear that we didn’t meet your expectations. The team are engaged in continuous development in terms of diagnostic practice. If you would like to speak to us about your experience please contact Chris Cole on 0141 451 0885.

Regards,

Tom

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Update posted by Spe63 (the patient)

Hello,

I apologise for my late reply but I have taken the time to collect my thoughts in a calm and an objective manner, I hope.

I really don’t wish to harm anyone’s reputation but I do need to get my main point across. Statistics show that 66% of autistic people have considered suicide as a solution to not having to cope with a world they don’t fully understand as the neurodivergent individuals they are. What is even worse is that 35% have already tried to commit suicide.

Therefore, not diagnosing autism correctly may influence the wellbeing of patients and their families in a very negative way.

I can only trust that you will let the staff encharged of my (failed) assessment know about these very sad facts within the Autistic Community.

I am open to the idea that I might not be autistic but not because of the reasons they gave to me: that I can keep eye contact, can maintain a conversation and have imagination for creating stories. It is a very well known fact that there are artists, actors and writers who are autistic. Shouldn’t the Team know that?

It is only fair that autistic people should be treated appropriately, just like everybody else. In my humble opinion the guidelines that are being used by the team are outdated and need to be improved, and catch up with the new data about the subject in question.

Thank you for your time and consideration.

Response from Julie Tomlinson, Chief Nurse, East Renfrewshire HSCP 7 months ago
Julie Tomlinson
Chief Nurse,
East Renfrewshire HSCP
Submitted on 14/10/2024 at 15:02
Published on Care Opinion at 15:03


picture of Julie Tomlinson

Dear Spe63,

My name is Julie Tomlinson I am the Chief Nurse for East Renfrewshire Health and Social Care Partnership.

Thank you again for taking the time to share your experience and thoughts of our Adult Autism Service. We welcome all feedback which helps inform the continuous development of the services we provide.

I apologise if your experience hasn’t met with your expectations.

Please contact Team Lead Chris Cole who would be happy to discuss any concerns you have.

Kind regards

Julie

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