"Dermatomyositis - 6 weekly infusions"

About: Western General Hospital / Day Infusion Unit Western General Hospital Day Infusion Unit Edinburgh EH4 2XU

Posted by Laura2024 (as the patient), 11 months ago

Back in 2021 I was diagnosed with Dermatomyositis and had a very acute case.
Spent 6 months in 3 different hospitals. Now attend the Day Unit every 6 weeks to receive infusion of privigen.

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Scott Robertson

Charge Nurse, Day Infusion Unit,

NHS Lothian

Submitted on 30/07/2024 at 15:55

Published on Care Opinion at 15:55

Thank you providing feedback with us via Care Opinions. It is always a pleasure to hear from out patients. If you have an suggestions on how we can improve our service, please do not hesitate to highlight them to a member of staff

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Update posted by Laura2024 (the patient) 11 months ago

Scott - you and all the staff are fantastic!
I feel so comfortable attending my infusions because I know all of you will greet me with a smile and a listening ear if I need it.
Nothing is too much even when trying to find one of my terrible veins! Even the delay in having my medication sometimes is okay because of all of you.
You never make me feel rushed or a burden. From my point of view, there is nothing that you can improve - just keep doing what you are doing and making patients feel okay about having infusions.
A great team that works well together!

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Dermatomyositis - 6 weekly infusions

"Dermatomyositis - 6 weekly infusions"

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Update posted by Laura2024 (the patient) 11 months ago

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