"No appointments for review"

I attended Neurology last year after a significant  waiting time from referral. The consultation was long awaited due to the daily pain I was in. I felt listened to and heard. I was referred for an MRI and commenced on a medication to try. It was my understanding that I would be seen again to discuss the MRI findings given I had an abnormal CT coming up 2 years ago now.  I also thought this would be to review if the medication was helpful.  My husband attended with me as support, therefore present for discussions.

Following my MRI I received a letter stating my MRI was normal, reassuring obviously, however it also stated - as discussed in my consultation - I was suffering from chronic migraines.  This was not discussed at my appointment.  I was asked to contact the service should I wish to discuss, which I did. 

I was given an appointment for October 2023. This was cancelled. I was then given an appointment for February 2024, this was cancelled again, at short notice. I contacted the appointment service via email and was directed to the consultant's secretary. I was advised that the consultant was hoping to do an extra clinic at the end of February and they would allocate me to this.

I then received a letter to apologise for cancelling my appointment and if I wished to be seen please contact the service.  I went back to the secretary and stated that I believed I had been clear that I wished to be seen. I have had no acknowledgement of my email. It is now July and I have had no appointment provided.

I have emailed again to enquire about this and yet again I feel like I am being ignored. I feel that the service is hoping I will go away as they are unable to meet the demand for their service. I live in pain every day and it would appear that I am being left to continue to do this. This is really disappointing.