During a routine operation at the Sick Children’s Hospital my son who has complex physical and mental needs had experience some complications which left him traumatised and refusing to eat or drink. Sadly the care we received within the ward was outrageous and not person-centred, leaving myself as a Mum feeling helpless.
Terrified and not sure where to turn to I reached out to the team who know my Son best, the Neuro Developmental Dieticians Lorraine and Lisa who we see at clinic on a fairly routine basis at Newmains.
Both of these dietitians heard and validated my concerns and followed through by making multiple calls to the ward and sharing experiences of my son. If it was not for both of these nurses working together to cover shifts to liaise with the ward I’m unsure where we would be at this moment in time.
Both these ladies ensured not only voice was heard as a parent/carer but my son too who is non verbal!
And the follow up from the ladies post-op has been incredible
Forever grateful for the support of this team and I hope this review leads to them getting some recognition for their hard work!
"Forever grateful for the support of this team"
About: Children's Specialist Health Services / Neurodevelopmental Service (NDS) Children's Specialist Health Services Neurodevelopmental Service (NDS) G67 1DZ
Posted by Amy462 (as ),
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