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"They phoned to say the clinic no longer exists"

About: Royal Devon & Exeter Hospital (Wonford) / Neurology

(as a service user),

I was seen by a doctor for 2.5 years who said there was nothing else they could do for me and just terminated all my appointments with me via letter instead of in-person and then just provided me with some generic medication and kept doubling it which made no difference to me what so ever.

I eventually went to a hospital in Plymouth. They had a look through all my scans and suggested it could be Motor Neurone Disease, they suggested some testing, I think it was a Lumbar Puncture test along with others, I asked if they could be done in Exeter because Plymouth is 40 miles away and I can't drive.

I had an appointment booked with the neurology team but they phoned me to say there was no longer a clinic for it anymore and they wouldn't say why.

This is quite distressing since, if I do actually have Motor Neurone Disease then I want to start getting treatment as soon as possible.

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Responses

Response from Cluster Support Manager (Eastern Services), Cluster 2, Medicine. HfOP, Stroke, Neurology and Neuro-rehab (Eastern Services), Royal Devon University Healthcare NHS Foundation Trust 13 months ago
Royal Devon University Healthcare NHS Foundation Trust
Submitted on 04/06/2024 at 12:26
Published on Care Opinion at 12:35


Hi chamaeleonzz53,

Thank you for your feedback. We take all feedback from patients very seriously and would like to discuss this with you in more detail. Please can I ask that you email your contact details onto the following email address so we can give you a call:-

rduh.medicinecomplaints@nhs.net

We completely understand that this may have caused you a large amount of destress and would like to resolve this as quickly and efficiently as possible.

We look forward to hearing from you further.

Best wishes,

Neurology Cluster Management Team, Eastern RDUH

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