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"Still waiting for a letter from Max Fac"

About: Lincoln County Hospital / Maxillo-Facial surgery

(as a parent/guardian),

First off, we got this appointment because my son has hypermobility Ehlers Danlos Syndrome & has issues with his jaw locking up, being unable to eat or drink when it does. The EDS specialist said this was because the jaw hinge is loose & so the lower mandible clicks out of place, otherwise known as a subluxation or partial dislocation.

I felt that doctor we saw at max fax was rude & quite aggressive. My son finds it very difficult talking to medical staff, so I as his mother & fellow hEDS sufferer, advocate for him. The doctor was completely ignorant of this & of his difficulties. This was all in early February 2024.

Since this appointment I have been waiting for the consultants report. It's now May and I've had nothing. I've tried calling & all I get is "call declined" from the secretary number I have. I need that consultation letter so I can show my son's dentist, he's been recommended for braces in order to help sort this problem he's having, out.

I feel really angry now, because I have been trying for months to get through to someone, so they can send me the letter. Can someone please get this letter to me?

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Responses

Response from Rebecca Stanham, Lead Nurse General Surgery, Vascular, Head and Neck, ULHT, United Lincolnshire Teaching Hospitals NHS Trust 11 months ago
Rebecca Stanham
Lead Nurse General Surgery, Vascular, Head and Neck, ULHT,
United Lincolnshire Teaching Hospitals NHS Trust
Submitted on 28/05/2024 at 13:16
Published on Care Opinion at 13:16


Dear volanstn86

I am sorry to read that you were unhappy with your maxillofacial experience, and I would like to talk to you to discuss your experience. Please can you email me on Rebecca.stanham@ulh.nhs.uk so we can discuss further.

Regards

Rebecca

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