This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"The team are amazing and so understanding"

About: Children and Young People Services / Child and Adolescent Mental Services

(as a carer),

My teenage son has Down syndrome, congenital heart disease and a missing right hand. He collapsed on holidays when there was only myself and him. I thought it was his heart but after a lot of investigations and overnight stays in hospital abroad and at home we were told it might be panic attacks.

It was a very scary time for both of us and I just felt our wee lives had changed forever and it was so unfair. Had we not enough to deal with with his heart etc.

I started to talk more to my son about what was worrying him and after a few weeks of putting all the bits of the jigsaw together I discovered it was school. He has severe learning difficulties and his speech can sometimes be unclear. He was being bullied by a much bigger boy who was never in his class before. No one seen anything and I was never told.

I arranged a meeting with the Principal of the school and after a lot of discussion he agreed it was best to move the boy. He got a key worker and a promised a permanent classroom assistant. Although his key worker has already changed I’m happy enough he has a familiar face to see everyday.

After being to Doctors several times we actually got a referral to Camhs. I just seem to have a fight everything we try to do.

We have been a few times and I can see light at the end of the tunnel. We are both practising breathing exercises. He seems not as anxious and the team are amazing and so understanding.

I don’t feel as alone anymore as I now have them for help. As a single parent living alone with my son it is hard but a weight has been lifted off my shoulders.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Ciaran Morrissey, CAMHS / ASD social work lead, CYP, Southern Health and Social Care Trust 2 weeks ago
Ciaran Morrissey
CAMHS / ASD social work lead, CYP,
Southern Health and Social Care Trust
Submitted on 20/05/2024 at 15:46
Published on Care Opinion at 15:46


Hi,

Thank you for taking the time to share your personal experience of ID CAMHS through Care Opinion. Such feedback is always gratefully received by practitioners who strive on a daily basis to provide a high quality of care to those using our services.

I am glad to hear that you and your son felt supported by the ID CAMHS team as it seems as though you have both faced a challenging time of late. It would be our hope that with support over the coming period, things improve further for you both.

Thanks again for taking the time to share your feedback with us and I will of course share this with the ID CAMHS Manager and the team.

Ciaran Morrissey

CAMHS / Autism Services Social Work Lead

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k