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"Kind, generous, understanding, empathetic, strong and supportive"

About: Queen Elizabeth University Hospital Glasgow / Neonatal Unit Royal Hospital for Children (Glasgow) / Renal (Ward 3C) Royal Hospital for Children (Glasgow) / Special care baby unit

(as a parent/guardian),

Our daughter was born prematurely and the placenta had ruptured meaning she was for some undetermined length of time, not getting enough oxygen to her organs. As a result, she began life with an acute kidney injury, which has progressed to Chronic Kidney Disease, a condition she will have to manage her entire life. 

She was born in Edinburgh, but 2 weeks late we were transferred through to Glasgow as her kidneys were still not improving. We spent some time in the NICU, then Special care and eventually the renal ward 3C.

Whilst it was really horrible to be away from home over Christmas and New Year, the staff at Glasgow’s Queen Elizabeth Hospital were so kind, generous, understanding, empathetic, strong and supportive.

Days were long and repetitive, scary and uncertain as we watched our daughter get a little bit better, then a little bit worse (then better again etc) and sometimes the smallest moments with doctors and nurses, where we spoke about something other than kidneys or rejoiced in moments where her blood results came back more positive looking, were some highlights of our days. 

The NICU and special care staff were incredible and cared for our daughter with eagle eyes and precision but also genuine affection for her. Nurses that had only spent a night with her would come by when they were next on shift to check on her and see how she was doing. 

The staff on ward 3C, who we will no doubt be seeing again at several points in our daughter's life, were incredible from the moment we arrived. Although we were coming to the end of a NICU journey we were entering into a much longer one, something which was not lost on everyone there. Up until this point we hadn’t been able to stay in the room with our daughter overnight, so it was amazing to be able to be with her all through the day and night. But when we were taking a break, or getting lunch or having a much needed night of sleep, there wasn’t one part of me that felt I couldn’t leave her, because she was in the best hands.

She was also with people that had genuine affection for her, they liked spending time with her, didn’t see her as a job or a burden and that makes such a difference when you’re leaving your baby. Seeing the staff with all the other children on the ward was also heart warming - faces lit up when children arrived, they made it feel like nothing scary happened there. 

They also had endless patience for all the questions we had (and my mother and my friends!) We are now such a well informed parents because of the time and effort they put in to making sure we fully understood each and every test, procedure and the reasoning behind it all. That knowledge has been invaluable so far and I know will stand us in good stead.

We cannot thank them enough for everything they did for our daughter and for us, when we were in their care.

I think our daughter is only alive today due to the care she received at the Queen Elizabeth and I will be forever in debt to all the staff that crossed paths with her.

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Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 12 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 22/05/2024 at 11:12
Published on Care Opinion at 11:12


picture of Nicole McInally

Dear Hannah829

Thank you so much for taking the time to share your story.

I am sorry to hear about the difficult time your daughter has had and I can’t begin to imagine how worrying this has been for all of you.

It's so wonderful to read that the staff were ‘kind, generous, understanding, empathetic, strong and supportive’. Our staff know that having a baby in hospital is an anxious and worrying time and do all that they can to provide reassurance and comfort. This also involves ensuring that you are fully informed and they are more than happy to answer any questions you have.

The staff in the NICU and Ward 3C will be very humbled by your kind words and amazing feedback.

Thank you and take care

Nicole

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Response from Sara Banks, Senior Charge Nurse, Ward 3C, Royal Hospital for Children, NHS Greater Glasgow and Clyde 11 months ago
Sara Banks
Senior Charge Nurse, Ward 3C, Royal Hospital for Children,
NHS Greater Glasgow and Clyde

Senior Charge Nurse Ward 3C Renal

Submitted on 04/06/2024 at 11:42
Published on Care Opinion at 11:54


Dear Hannah829

Thank you very much for taking the time to share your story and leave feedback for my staff in ward 3C Renal.

I was so delighted to read that from the moment you arrived in 3C the staff were incredible as you have described. It was touching to read that you felt your daughter was left in the best hands when you ever had to leave the ward for a spell of time.

It was lovely to read that you feel more informed as a family due to time and effort staff gave you to make sure you were fully understanding of what was happening and the reasoning behind it all. I have made sure that the staff in ward 3C Renal have seen your feedback.

I am delighted your daughter has been discharged home and hope she is doing well.

Many thanks again,

Sara Banks

Senior Charge Nurse

Ward 3C Renal

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