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"Fibro flare ups and feeling supported"

About: Primary Mental Health Care Services / Condition Management Programme

(as the patient),

I was on the sofa most of the day, not really eating , I couldn't be bothered to get showered most days because of the pain and I suppose a bit of depression . I was feeling very low. Up until now I also have sciatica . I wasn't going out and was sleeping most of the time because at night my sleep was disturbed because of the pain and restless legs . I was and still am on long term sick , this condition has taken my work life and social life . I was always very active . 

I have worked for 50 years and I am retiring this August . I have always been a positive, outing ,life and soul of the party type person I never said no or stayed in the house . I have also been practising self development for over 30 years  but with all this I have never felt so negative. You can imagine how I was feeling with all this, totally frustrated.

Then a phone call from Lucia from CMPT changed all that .  She is a lovely lady she listened to my story and its because of her and this program that I am off the sofa and eating better healthier , my space at home is neat and tidy . She made me see how I can manage this condition and it doesn't have to be this way . Lucia also reminded me of mind body connection,  stuff I already knew but had completely forgotten about . Lucia got me back to my self development She reminded me of how strong I am and how I can have a life with this condition if I manage it correctly . Don't get me wrong I'm not going mountain walking any more I know my limits but I am getting out and if I need to stop and rest I do and that's OK  . Because of Lucia and this program I can see a future a life  all be it a different one than before but that's OK.  Lucia made me see that .

Thank you so much Lucia you will never know how much you have done for me I really can't thank you enough .

Love and light .

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Responses

Response from Barbara Anne Richardson, Condition Management Programme Coordinator, Mental Health & Disability Directorate, Southern Health and Social Care Trust last week
Barbara Anne Richardson
Condition Management Programme Coordinator, Mental Health & Disability Directorate,
Southern Health and Social Care Trust
Submitted on 08/05/2024 at 17:33
Published on Care Opinion at 17:33


Thank you for taking the time to share your very personal experience of Fibromyalgia and your engagement with the Condition Management Programme (CMP). I am delighted that you found it so supportive and beneficial. Lucia is a physiotherapist who we have been lucky enough to have working within CMP for a long number of years and she is a vital part of our wider CMP team. I will ensure that your kind words are shared with her.

Kind regards

Barbara-Anne

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Update posted by cyclonefk95 (the patient)

Thank you Barbara Anne, much appreciated.

Regards

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