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Meningioma brain tumours missed on MRIs

Posted By Janpp37

"Meningioma brain tumours missed on MRIs"

About: Cancer Services / Radiotherapy Neurology / Neurology/Neurosurgery Outpatients Area 3A Ophthalmology / Ophthalmology Outpatients Area 6A

(as the patient),

Three meningiomas missed on two MRIs.

Basically told that I was a menopausal women with headaches. 

Only looked at past MRIs again as I was so persistent. The headaches had become unbearable. 

Radiologists, Ophthalmologists and Neurologists had failed me. All had dismissed me and made me feel like they thought I was a time waster. I cannot put into words how that made me feel and now I would always question a medic.  I naively thought that if you were in such chronic daily pain you would be listened to . 

I have now had Radiotherapy on one tumour that was inoperable and waiting for results once swelling on the brain  has decreased. I should  also hopefully find out the plan for the other two meningiomas at that time.

I am now being given the level of care that I would expect from NHS. 

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Responses

Response from Robert Kelly, Clinical Support Worker, Radiotherapy, NHS Tayside 2 weeks ago
Robert Kelly
Clinical Support Worker, Radiotherapy,
NHS Tayside

Submitted on 29/04/2024 at 15:52
Published on Care Opinion at 15:52

Dear Janpp37, thank you for taking the time to feedback your experience to date. My name is Bob, one of the Support Workers who would have welcomed you to our Radiotherapy Department. I am so sorry to hear of your experience prior to visiting our department and I do hope that you received your expected level of care from our Therapeutic Radiographers.

I also hope that you benefit from your treatments and that your current level of care continues.

Kind regards... Bob

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Response from Nicola McKee, Lead Nurse, Specialist Services, NHS Tayside 2 weeks ago
Nicola McKee
Lead Nurse, Specialist Services,
NHS Tayside

I work as a Lead nurse within the Triumvirate structure for Specialist Services. I provided Leadership and Professional Nursing support to the following teams: Renal, Oncology, Haematology, Neurosciences (which include Neurology, Neurosurgery and all linked specialities), Genetics, Radiology, Advanced Intervention Service and Pain Service in addition to this I also provide Professional support to Stracthro Regional Treatment Centre

Submitted on 29/04/2024 at 17:00
Published on Care Opinion at 17:00

picture of Nicola McKee

Dear Janpp37,

I am really sorry to read of your experiences, this sounds really distressing. Feedback is really important to us and I would like to thank you for taking the time to share yours. We would be keen to investigate your concerns further and look to identify any learning and improvement to service. If you were happy to do so, we would encourage you to contact our patient experience team directly:

Patient Experience Team, Ninewells Hospital, Dundee, DD1 9SY telephoning 0800 027 5507 (freephone) or email TAY.feedback@nhs.scot

Kind regards

Nicola McKee, Lead Nurse, Specialist Services

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Response from Senior Nurse, Surgery - Ninewells Hospital, NHS Tayside last week
NHS Tayside

Submitted on 03/05/2024 at 12:58
Published on Care Opinion at 13:21

Dear Janpp37

We are very sorry to hear about your experience within our department and concerned that this has undermined your confidence and trust.

Any feedback received is taken extremely seriously and we would certainly advise, as above, that you make contact with the patient experience team to ensure your concerns are investigated correctly and any issues can be addressed.

We are pleased to hear that you now feel your care is appropriate and hope you have all the help and support you need now.

Kind regards

Ophthalmology Department

Ninewells Hospital

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