"Treated poorly by specialist"

Little overview: I have numerous medial conditions - ibd, inflammatory arthritis, hEDS, sleep apnea, cervicle spine issues. I also experience chronic pain and fatigue daily. I've a long history of specialist appointments over the last 10 years and I'm sick and tired of being treated so poorly by each specialist I see (there are a few good ones).

Basically, I was diagnosed with craniocervical instability and atlantoaxial instability by a world renowned Neurosurgeon/Spinal surgeon who specialises in diagnosing craniocervical instability amongst EDS patients.

My rheumatology doctor referred me to Neurosurgery once I showed them all my results. I can't thank my rheumatology doctor enough as they've been very good with all this from the start.

My initial phone consult, the neurosurgery specialist was extremely rude and didn't really want to listen to anything I said. Well that's how it felt to me, I literally didn't even want to go to the appointment as the telephone consultation was such a negative experience.

During my appointment before even looking at my scans, the specialist dismissed the neurosurgeon's diagnosis before even looking at my scans. I'd add they scrolled through them while I was in the office. You’re talking 5-10 min look. They were also really unprofessional about the neurosurgeon and the hospital they work in. Stating as soon as they see the hospital's name on letters they dismiss them straight away.

Secondly, the NHS Radiology department refused to look at the scans, as they didn't have an accompanying radiologist report.

I'd add the day after seeing the neurosurgery specialist and having my neck examined and moved, I experienced an episode of full body tremors (almost looked like a seizure but was my muscles spasming). After a 10-hour A&E wait I left as was told there was still an 8-hour wait. I returned 2 days later and the A&E doctor diagnosing FND. I'd add they ran some bloods and a CT to check for stroke.

Because of the above, I paid for second opinion scans via a private radiologist who works for the brain and spine advocate who specialises in craniocervical junction conditions. These radiologist reports support the neurosurgeon's diagnosis.

I've managed to get referred across the water for a second opinion.

I'll be really honest, I feel like all that's going on is a form of medical negligence. In the end, the neurosurgery specialist fobbed me off to Neurology to see someone else.