I was given an appointment with this service without any information about what the appointment was for. I telephoned and was told that the appointment would be to initiate ADHD medication. I was also told it was possible for this to be on teams (this information was not in the letter).
The initial appointment lasted 10 minutes and effectively consisted of the clinician telling me that they didn't have my diagnosis on file. While attempting to look for it, I asked why this had not been requested from me prior to the call when it would be less stressful. The clinician told me they had requested it from my GP (which I think is not true) and that if I couldn't find the diagnosis they could always discharge me.
With all this stress, as an autistic person I began to have a meltdown. At which point, the clinician told me they would have to end the call as I was getting distressed.
I sent the diagnosis (obtained under right to choose) and heard nothing for over a week, in spite of chasing. I then got an email telling me I was being discharged as my diagnosis report did not meet their criteria. I have still not had a clear explanation from anyone as to why my diagnosis report was insufficient.
I have a 2nd private diagnosis and that is also deemed unacceptable and no one can tell me why,
Despite having been on the waiting list for medication since November 2023, this waiting time does not count for an assessment for some reason and I have been told my GP must refer me and I must start the waiting list again - this is now 36 months long.
I first joined the NeSS waiting list in November 2021 and came off to go on the NHS right to choose list. The right to choose provider has been accepted by the NHS as able to provide an assessment and it seems that NeSS is not only applying an arbitrarily different standard (which they cannot explain to me) but also they are ignoring all of the time I have already waited.
I feel there is no help for my mental health in the meantime as anti-depressants don't work and have many side effects,
This whole interaction has left me suicidal and it feels like there is absolute no support available to me in this crisis.
"I have still not had a clear explanation from anyone"
About: Intellectual Developmental Disabilities /Learning Disability Services - Community / Neurodevelopmental Specialist Service Intellectual Developmental Disabilities /Learning Disability Services - Community Neurodevelopmental Specialist Service Bullwell NG6 9DR
Posted by coinkx88 (as ),
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Responses
See more responses from Stephen Hall
Update posted by coinkx88 (a service user) 15 months ago
See more responses from Jackie Dziewanowska