"Named doctors"

I have had complex gastro issues for 21 years, and after abdominal surgery in 2007 I have had Gastroparesis. From 2005 I had the same gastroenterologist, gastro surgeon, and dietician, with frequent appointments until 2020 to allow me to manage my health issues.

My gastroenterologist retired in 2020, and with much sadness my gastro surgeon died, and given my last feeding tube was removed in 2020, my dietician only supported patients with feeding tubes. So I lost all of my specialists all at once, and a neurological condition set in, and the NHS having to deal with Covid.

Since 2020 I have had two gastro face-to-face appointments with different gastroenterologist, one is a private doctor paid by NHSOne gastroscope. I have had two appointments with neurologist. You might think that is good. I am told now on two occasions there is no named doctor anymore. So I have my Neuro doctor saying my neuro symptoms are down to Gastro, whilst Gastro Dr. says no, Neuro symptoms are caused by something else. Meaning I am piggy in the middle suffering much pain.

OK, the NHS will have to go through many changes as to how patients are treated over many years to come and to how they reduce waiting lists to more manageable waiting times. My issue, given that I am not being seen by the same doctor, means clinical records have become precious. What I am seeing is records not reflecting accurately the constant pain and concerns of the patients and if a doctor has misunderstood, or I haven't explained my situation properly, this is recorded inaccurately and picked up by the next doctor, and I am not in a position to rectify - eg, this is just a simple example, my age was recorded wrong, also I would be open to have one particular medication reviewed. I wanted all my 60+ meds reviewed in line with the new neurological issues I now have. This can be carried on to next medical appointment and may influence what treatment I will receive. There are other issues from the Gastro doctor, which other doctors have simply copied and pasted on their report.

My gastro doctor pre-covid was terrific, they not only treated my health issues, but over the years they educated me on the medications I used but also what to look out for with my symptoms and made me feel involved in my care. One of the many symptoms of gastroparesis is acid burn in stomach and lower Oesophagus which was managed well. Now though for the last year I have not only burning in my stomach, I am having severe pain in Oesophagus, my mouth feels as though it is burning with horrible taste and my voice has softened. 

I am in the process of asking for a copy of my medical records. One issue is they are asking what in particular I am looking for. Trouble is I do not know where my records have potentially gone wrong and then wrong assumptions made. Just makes me feel uneasy when I see the next different doctor and they pick up on something which is not accurate.

Woo Woo is me, being a patient these days requires a lot of patience. 

Should patients not have easier access to clinical records? The form I need to fill in is like an MI5 application. No doubt security is paramount, but why do I need to pick and choose which records I need?