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Paediatric reviews

Posted By Nicumummy

"Paediatric reviews"

About: The Ulster Hospital / Paediatric Outpatients

(as a parent/guardian),

My daughter is under review with a Consultant Paediatrician at the Ulster Hospital due to being born very prematurely with low birth weight. She attends reviews every 3-6 months.

My experience of our consultant has been disappointing. They do not interact with my baby / observe her and relies on my report. I feel rushed at the outpatient appointments and under pressure. If bloods are taken I have to chase the results of these and have not been provided with her most recent report despite asking several times. As a parent I am my child's advocate and I need to understand her medical care in order to be involved in it. 

I think there is scope to improve interactions with both parents and babies. Doctors need to look at the child holistically, including their recent referrals and investigations.

The positives are that when I have had concerns about my baby these were listened to and investigated with further tests. 

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Responses

Response from Karen Orr, Interim Lead Nurse, Woman & Acute Child Health, South Eastern Health & Social Care Trust 14 months ago
Karen Orr
Interim Lead Nurse, Woman & Acute Child Health,
South Eastern Health & Social Care Trust

Submitted on 09/04/2024 at 17:16
Published on Care Opinion at 17:16

Dear Nicumummy,

I am the Lead Nurse for Acute Paediatrics at the Ulster Hospital.

Thank you for taking the time to share your experience regarding your daughter’s outpatient attendances.

I appreciate your positive feedback regarding concerns being listened to and investigated with further tests.

I fully empathise with the points you have raised about your experience with the Paediatric Consultant. In order to review and respond to your story effectively and appropriately at a personal level, if you wish to do so, I would ask you to use the Trust Complaints Procedure as the channel through which to address these matters.

Please access the Trust Complaints Procedure and associated information through the Trust website at https//:setrust.hscni.net/contact-us/complaints

Should you wish to link with me directly, please email me at karen.orr@setrust.hscni.net.

I hope that your daughter keeps well going forward.

Best wishes,

Karen

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