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"Covid 19 and Idiopathic Pulmonary Fibrosis"

About: Crosshouse Hospital / Intensive Care Unit Crosshouse Hospital / Respiratory medicine General practices in Ayrshire & Arran

(as the patient),

In June 2022 we were travelling to holiday in Monte Gordo, the Algarve, Portugal. The day before we flew we stayed at an airport hotel close to Glasgow International Airport. We found the hotel bedroom to be unclean and limited precautions against Covid 19 were evident throughout the hotel.

Two days after we arrived at our hotel in Monte Gordo, my wife and I were both struck down with Covid 19, we tested and the results were positive. We both suffered dreadfully for about five days. We were then helped to isolate for the rest of our two-week holiday by the wonderful precautions and opportunities put in place by our hotel. Although my wife improved, my health deteriorated and I could only walk for about ten yards before having to sit and rest because my breathing was impaired so badly. 

On return to Scotland, my breathing became much worse, and after a week, I phoned our surgery for an appointment, which was granted for a little later that day. I went to our bathroom to shower before I visited the surgery. Unhappily, I collapsed and was unconscious. My wife discovered me and immediately phoned the surgery. The Doctor who was due to see me said she would come to our house urgently. 

On her arrival, she undertook various tests and identified that I needed immediate hospital treatment, which she organised for me. Shortly after, an ambulance arrived and after more tests connected me to oxygen and rushed me to Intensive Care Unit in Crosshouse Hospital. The Doctor who admitted me identified that my blood oxygen level was down at 40% and I could have died!  After two days in Intensive Care, I was transferred to an Isolation Ward for Covid 19.

I spent a month in that room, initially on full-blast oxygen help, but over time that was reduced eventually to zero reliance. After that, I was discharged and allowed to come home. I must say that my treatment, throughout this life drama,  from each support service by the NHS was wonderful! I am so appreciative! 

On discharge, the hospital consultant told me that I had been riddled with Covid 19 virus and it had ravaged my lungs and unfortunately doubled the size of the scarring of my lungs which would never improve and eventually would end my life.

After my recovery at home, I was prescribed oxygen within my home for the times when I exerted myself or generally needed it. As of now, I use oxygen infrequently but realise that my reliance will increase as my fibrosis develops.  To slow the progression, I feel very privileged that I have also been prescribed a drug that is very expensive for the NHS. It is not automatically given to everyone with my condition. Currently, I try to walk at least a mile a day, I visit a fitness class for two sessions a week (oxygen definitely required), and I try to stay active through DIY and Gardening. 

Thank you so much The NHS, you saved my life!!

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Responses

Response from Pamela Gibson, Patient Experience Facilitator, Nursing, NHS Ayrshire and Arran last month
Pamela Gibson
Patient Experience Facilitator, Nursing,
NHS Ayrshire and Arran

Monitor stories and provide administration for NHS Ayrshire & Arran

Submitted on 26/03/2024 at 11:22
Published on Care Opinion at 11:22


picture of Pamela Gibson

Dear Lungs versas Covid 19

Thank you for taking the time and trouble to share your healthcare experience with us via Care Opinion.

What a scary and anxious it must have been for you and your wife, particularly when you tested positive in a country far from home. The covid pandemic brought so many challenges to everyone, in ways that we couldn’t even begin to imagine. It is great to hear that you were able to recover from the infection, and although you were left with lasting complications, you are now able to manage with infrequent use of oxygen.

I am delighted to hear that you received such prompt, professional and compassionate care from all of our staff. This is a lovely example of different Teams working together to provide the patient centred care that we strive to deliver.

Our staff really appreciate receiving feedback from their patients and it will be my pleasure to share your kind comments with the wider Teams who would have taken care of you.

Please accept my best wishes and thank you once again for taking the time to acknowledge your care experience.

Kind regards

Pamela

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Response from Danielle McNaught, Business Manager, Primary and Urgent Care, NHS Ayrshire & Arran last month
Danielle McNaught
Business Manager, Primary and Urgent Care,
NHS Ayrshire & Arran
Submitted on 26/03/2024 at 11:49
Published on Care Opinion at 11:49


Dear Lungs versas Covid 19

Thank you very much for sharing your story with us via Care Opinion. I was sorry to hear of what a difficult and worrying time you faced after contracting the COVID-19 virus. I am so pleased to hear that you have made such a remarkable recovery and hope that this continues.

I reply on behalf of the Primary Care Team. If you wish to share any more information with regards to your GP Surgery and the GP who visited you urgently at home, you can email HSCPAdmin@east-ayrshire.gov.uk (marked for the attention of Primary Care) providing your details and the name of the GP Practice you are registered with. Or alternatively, you can respond to this post with the name of the GP Practice you are registered with. We will ensure this is passed on to them.

Thank you so much for taking the time to share your experience with us. Please accept my very best wishes as you continue your recovery.

Kind regards

Danielle

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