Care Opinion

Text size

Theme

Language

Videos in BSL or ISL
Help with language translation
Help with reading or listening

Timescale is shocking

Posted By mayje55

"Timescale is shocking"

About: Queen Elizabeth University Hospital Glasgow / Neurology (Ward 53 and 67)

(as a parent/guardian),

My daughter started attending QEH Glasgow in summer 2023.

1st appointment was very good. Dr arranged all tests.  Attended them all & have recently been diagnosed with MS. Now on list for MS Consultant.

Advised 26 week waiting time. Had appointment for 3 weeks time & today received cancellation letter, now to wait another 4 weeks.  All website pages regarding MS say treatment should start close to diagnosis to help stop further relapses. I feel this timescale is totally shocking for anyone to wait.   The worry of relapsing causes more stress.  

More about:
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Helena Richmond, Interim Lead Nurse, Neurology, NHS Greater Glasgow and Clyde 15 months ago
Helena Richmond
Interim Lead Nurse, Neurology,
NHS Greater Glasgow and Clyde

Submitted on 20/02/2024 at 16:19
Published on Care Opinion on 21/02/2024 at 10:40

Good Afternoon,

Thank you for raising concerns, I apologise that you daughter's treatment has been cancelled which has caused stress and anxiety. The service endeavours to review and administer appropriate treatment within an appropriate time frame to prevent relapse or deterioration, I will liaise with with MS team to review waiting times to prevent relapse, we will be in touch to up date you,

Kind Regards,

Helena Richmond

Lead Nurse

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Helena Richmond, Interim Lead Nurse, Neurology, NHS Greater Glasgow and Clyde 15 months ago
Helena Richmond
Interim Lead Nurse, Neurology,
NHS Greater Glasgow and Clyde

Submitted on 21/02/2024 at 17:56
Published on Care Opinion on 22/02/2024 at 11:31

Good Afternoon,

If you can give me a call on 0141 201 2343 with your daughters details I will liaise with the appropriate team,

Kind Regards,

Helena Richmond

Lead Nurse, Neuro Medicine

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by mayje55 (a parent/guardian)

Thank you Helena for responding. After I wrote the post I contacted my daughter’s MS nurses by phone. Left a message asking her nurse if she could help point me in the correct direction for help. Pamela one of the MS nurses called her back. She went out of her way & managed to get an earlier appointment for 10 days later than original appointment instead of waiting for the 4 weeks later rearranged appointment. I cannot thank the MS nurses enough. Only another 16 days till we eventually meet the MS Consultant to start treatment/meds. 🤞

Opinions
Next Response j
Previous Response k